ArticleThe Journal of pediatrics2012
Impact of type 1 diabetes mellitus on the family is reduced with the medical home, care coordination, and family-centered care.
Article in The Journal of pediatrics, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it, 65 citations in OpenAlex.
- Benefits, implementation and sustainability of innovative paediatric models of care for children with type 1 diabetes: a systematic review.BMC pediatrics · 2024Pooled it
- Parents' experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence.BMC pediatrics · 2021Pooled it
- Telehealth Education via WeChat Improves the Quality of Life of Parents of Children with Type-1 Diabetes Mellitus.Applied clinical informatics · 2022Trial
- Therapeutic play to teach children with type 1 diabetes insulin self-injection: A pilot trial in a developing country.Journal for specialists in pediatric nursing : JSPN · 2021Trial
- Home Visits for Children and Adolescents with Uncontrolled Type 1 Diabetes.Diabetes technology & therapeutics · 2020Trial
- Trial
- Effects of a Telehealth Care Coordination Intervention on Perceptions of Health Care by Caregivers of Children With Medical Complexity: A Randomized Controlled Trial.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & PractitionersTrial
- Income Relates to Adherence in Youth with Type 1 Diabetes Through Parenting Constructs.Journal of developmental and behavioral pediatrics : JDBPTrial
- The Hidden Everyday-Life Burden of Pediatric Type 1 Diabetes: A Household Implementation Framework for Modern Diabetes Technology and Family Care.Current diabetes reports · 2026Review
- A nurses' perspective on life satisfaction of parents of children with type 1 diabetes mellitus.Frontiers in endocrinology · 2026Article
- Comparison of the impact of type 1 and type 2 diabetes on quality of life of families of patients: A UK cross-sectional study.Diabetes, obesity & metabolism · 2025Article
- Prevalence and factors associated with school failure in children with type 1 diabetes.Pediatric endocrinology, diabetes, and metabolism · 2024Article
- Unmet supportive care needs in families of children with chronic health conditions: an Australian cross-sectional study.World journal of pediatrics : WJP · 2023Article
- Parents' views about healthcare professionals having real-time remote access to their young child's diabetes data: Qualitative study.Pediatric diabetes · 2022Article
- Impact of virtual care on health-related quality of life in children with diabetes mellitus: a systematic review protocol.BMJ open · 2022Article
- Family-Centered Care Coordination in an Interdisciplinary Neurodevelopmental Evaluation Clinic: Outcomes From Care Coordinator and Caregiver Reports.Frontiers in pediatrics · 2020Article
- Predictors of Adherence to Self-Care Behavior Among Patients with Diabetes at Public Hospitals in West Ethiopia.Diabetes, metabolic syndrome and obesity : targets and therapy · 2020Article
- Outcomes That Matter to Teens With Type 1 Diabetes.The Diabetes educator · 2017Article
- Partnering with Insurers in Caring for the Most Vulnerable Youth with Diabetes: NICH as an Integrator.Current diabetes reports · 2017Review
- Parent Employment and School/Daycare Decisions among Parents of Young Children with Type 1 Diabetes.Children's health care : journal of the Association for the Care of Children's Health · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
objectivesTo examine whether the medical home, care coordination, or family-centered care was associated with less impact of type 1 diabetes mellitus (T1D) on families' work, finances, time, and school attendance. STUDY
designWith the 2005 to 2006 National Survey of Children with Special Health Care Needs, we compared impact in children with T1D (n = 583) with that in children with other special health care needs (n = 39 944) and children without special health care needs (n = 4945). We modeled the associations of the medical home, care coordination, and family-centered care with family impact in T1D.
resultsSeventy-five percent of families of children with T1D reported a major impact compared with 45% of families of children with special health care needs (P < .0001) and 17% of families of children without special health care needs (P < .0001). In families of children with T1D, 35% reported restricting work, 38% reported financial impact, 41% reported medical expenses >$1000/year, 24% reported spending ≥11 hours/week caring or coordination care, and 20% reported ≥11 school absences/year. The medical home, care coordination, and family-centered care were associated with less work and financial impact.
conclusionsIn childhood T1D, most families experience major impact. Better systems of health care delivery may help families reduce some of this impact.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.