ArticleJournal of the American Medical Informatics Association : JAMIA
The challenges in making electronic health records accessible to patients.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 44 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
44 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- A systematic review of patient access to medical records in the acute setting: practicalities, perspectives and ethical consequences.BMC medical ethics · 2020Pooled it
- The Impact of Patient Online Access to Computerized Medical Records and Services on Type 2 Diabetes: Systematic Review.Journal of medical Internet research · 2018Pooled it
- Patients' online access to their electronic health records and linked online services: a systematic review in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2015Pooled it
- Patients' online access to their electronic health records and linked online services: a systematic interpretative review.BMJ open · 2014Pooled it
- Integrated analysis for electronic health records with structured and sporadic missingness.Journal of biomedical informatics · 2025Article
- LLMonFHIR: A Physician-Validated, Large Language Model-Based Mobile Application for Querying Patient Electronic Health Data.JACC. Advances · 2025Article
- Identifying Medication Review Topics to Be Documented in a Structured Form in Electronic Health Record Systems: Delphi Consensus Survey.Journal of medical Internet research · 2025Article
- Impact of personalized risk scores on shared decision making in left ventricular assist device implantation: Findings from a qualitative study.Patient education and counseling · 2025Article
- Patient online access to general practice medical records: A qualitative study on patients' needs and expectations.Health information management : journal of the Health Information Management Association of Australia · 2024Article
- Learnings in Digital Health Design: Insights From a Pilot Web App for Structured Note-Taking for Patients With Rheumatoid Arthritis.JMIR formative research · 2023Article
- Is a bio-psychosocial approach model possible at the first level of health services in the Democratic Republic of Congo? An organizational analysis of six health centers in South Kivu.BMC health services research · 2023Article
- Experience of introducing an electronic health records station in an objective structured clinical examination to evaluate medical students’ communication skills in Canada: a descriptive study.Journal of educational evaluation for health professions · 2023Article
- Thinking out of the box: revisiting health surveillance based on medical records.Antimicrobial stewardship & healthcare epidemiology : ASHE · 2023Article
- The Impact of Patient Access to Their Electronic Health Record on Medication Management Safety: A Narrative Review.Saudi pharmaceutical journal : SPJ : the official publication of the Saudi Pharmaceutical Society · 2022Review
- Factors Influencing Development and Implementation of Patients' Access to Electronic Health Records-A Comparative Study of Sweden and the Netherlands.Frontiers in public health · 2021Article
- Vaccination coverage estimation in Mexico in children under five years old: Trends and associated factors.PloS one · 2021Article
- Examination and diagnosis of electronic patient records and their associated ethics: a scoping literature review.BMC medical ethics · 2020Article
- Towards an Adoption Framework for Patient Access to Electronic Health Records: Systematic Literature Mapping Study.JMIR medical informatics · 2020Article
- Home-Based Pediatric Palliative Care and Electronic Health: Systematic Mixed Methods Review.Journal of medical Internet research · 2020Review
- Perspective of Patients with Metastatic Breast Cancer on Electronic Access to Scan Results: Mixed-Methods Study.Journal of medical Internet research · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
It is becoming increasingly apparent that there is a tension between growing consumer demands for access to information and a healthcare system that may not be prepared to meet these demands. Designing an effective solution for this problem will require a thorough understanding of the barriers that now stand in the way of giving patients electronic access to their health data. This paper reviews the following challenges related to the sharing of electronic health records: cost and security concerns, problems in assigning responsibilities and rights among the various players, liability issues and tensions between flexible access to data and flexible access to physicians.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.