ArticleJournal of palliative medicine2011
Giving voice to patients' and family caregivers' needs in chronic heart failure: implications for palliative care programs.
Article in Journal of palliative medicine, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
39 citing papers in PubMed, 4 syntheses or guidelines pooled it, 106 citations in OpenAlex.
- Pooled it
- Referral Criteria to Palliative Care for Patients With Heart Failure: A Systematic Review.Circulation. Heart failure · 2020Pooled it
- Collaborative care intervention for patients with chronic heart failure: A systematic review and meta-analysis.Medicine · 2019Pooled it
- Implementation and Effectiveness of Integrating Palliative Care Into Ambulatory Care of Noncancer Serious Chronic Illness: Mixed Methods Review and Meta-Analysis.Annals of family medicinePooled it
- Rationale and study design of a patient-centered intervention to improve health status in chronic heart failure: The Collaborative Care to Alleviate Symptoms and Adjust to Illness (CASA) randomized trial.Contemporary clinical trials · 2016Trial
- An Intervention to Enhance Goals-of-Care Communication Between Heart Failure Patients and Heart Failure Providers.Journal of pain and symptom management · 2016Trial
- Feasibility and acceptability of a collaborative care intervention to improve symptoms and quality of life in chronic heart failure: mixed methods pilot trial.Journal of palliative medicine · 2014Trial
- Experiences, perspectives and preferences for home-based palliative and supportive care: a qualitative study of individuals with heart failure and their carers.BMC palliative care · 2026Article
- Person-Centered Health Intervention Programs Provided at Home to Older Adults with Multimorbidities and Their Caregivers: A Systematic Review.Healthcare (Basel, Switzerland) · 2026Review
- Advancing Heart Failure Care Through Disease Management Programs: A Comprehensive Framework to Improve Outcomes.Journal of cardiovascular development and disease · 2025Review
- Components of home-based palliative and supportive care for adults with heart failure: A scoping review.Palliative medicine · 2025Article
- Increasing goals of care conversations in primary care: Study protocol for a cluster randomized, pragmatic, sequential multiple assignment randomized trial.Contemporary clinical trials · 2024Article
- Design of a Dyadic Digital Health Module for Chronic Disease Shared Care: Development Study.JMIR human factors · 2023Article
- Perceptions and Attitudes toward a Proposed Digital Health Physical Activity Program among Older Family Caregivers of Persons with Heart Failure: A Qualitative Study.Informatics for health & social care · 2023Article
- Prevalence and characteristics of patients with heart failure needing palliative care.BMC palliative care · 2021Article
- Characteristics for a tool for timely identification of palliative needs in heart failure: The views of Dutch patients, their families and healthcare professionals.European journal of cardiovascular nursing · 2020Article
- Using Grounded Theory to Inform the Human-Centered Design of Digital Health in Geriatric Palliative Care.Journal of pain and symptom management · 2020Article
- Identifying critical psychotherapy targets in serious cardiac conditions: The importance of addressing coping with symptoms, healthcare navigation, and social support.Palliative & supportive care · 2019Article
- Does heart failure-specific health status identify patients with bothersome symptoms, depression, anxiety, and/or poorer spiritual well-being?European heart journal. Quality of care & clinical outcomes · 2019Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 1 institution in 1 country.
Funding
Abstract
backgroundThe American College of Cardiology Foundation/American Heart Association (ACC/AHA) Guidelines for the Management of Heart Failure recommend palliative care in the context of Stage D HF or at the end of life. Previous studies related to heart failure (HF) palliative care provide useful information about patients' experiences, but they do not provide concrete guidance for what palliative care needs are most important and how a palliative care program should be structured.
objectivesDescribe HF patients' and their family caregivers' major concerns and needs. Explore whether, how, and when palliative care would be useful to them. DESIGN AND
participantsQualitative study using in-depth interviews of 33 adult outpatients with symptomatic HF identified using purposive sampling and 20 of their family caregivers. APPROACH: Interviews were transcribed verbatim and analyzed using the constant comparative method. KEY
resultsOverall, patients and caregivers desired early support adjusting to the limitations and future course of illness, relief of a number of diverse symptoms, and the involvement of family caregivers using a team approach. A diverse group of participants desired these elements of palliative care early in illness, concurrent with their disease-specific care, coordinated by a provider who understood their heart condition and knew them well. Some diverging needs and preferences were found based on health status and age.
conclusionsHF patients and their family caregivers supported early integration of palliative care services, particularly psychosocial support and symptom control, using a collaborative team approach. Future research should test the feasibility and effectiveness of integrating such a program into routine HF care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.