ArticleAmerican journal of public health2012
Ethical justification for conducting public health surveillance without patient consent.
Article in American journal of public health, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers, 1 of them a synthesis that pooled it.
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Who cites it
45 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Ethical issues in public health surveillance: a systematic qualitative review.BMC public health · 2017Pooled it
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- Spatiotemporal patterns and forecasted trends of dengue in Saudi Arabia: a national surveillance study, 2012-2024.BMC infectious diseases · 2026Article
- More evidence is needed to improve molecular HIV surveillance for cluster detection and response.Communications medicine · 2025Article
- Action needed to address molecular HIV surveillance ethical concerns.Canadian journal of public health = Revue canadienne de sante publique · 2025Article
- Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities.Journal of medical Internet research · 2025Article
- Prioritization of ethical concerns regarding HIV molecular epidemiology by public health practitioners and researchers.BMC public health · 2024Article
- Investigating Citizens' Acceptance of Contact Tracing Apps: Quantitative Study of the Role of Trust and Privacy.JMIR mHealth and uHealth · 2024Article
- Advancing Dialogue About Consent and Molecular HIV Surveillance in the United States: Four Proposals Following a Federal Advisory Panel's Call for Major Reforms.The Milbank quarterly · 2023Article
- Lessons learned from community engagement regarding phylodynamic research with molecular HIV surveillance data.Journal of the International AIDS Society · 2023Article
- Ending the HIV Epidemic: Identifying Barriers and Facilitators to Implement Molecular HIV Surveillance to Develop Real-Time Cluster Detection and Response Interventions for Local Communities.International journal of environmental research and public health · 2023Article
- Digital public health leadership in the global fight for health security.BMJ global health · 2023Article
- Botswana tuberculosis (TB) stakeholders broadly support scaling up next-generation whole genome sequencing: Ethical and practical considerations for Botswana and global health.PLOS global public health · 2023Article
- Wastewater research and surveillance: an ethical exploration.Environmental science : water research & technology · 2022Review
- The ethical dilemma of mobile phone data monitoring during COVID-19: The case for South Korea and the United States.Journal of public health research · 2022Article
- 'Personal Health Surveillance': The Use of mHealth in Healthcare Responsibilisation.Public health ethics · 2021Article
- Towards an appropriate ethics framework for Health and Demographic Surveillance Systems (HDSS): learning from issues faced in diverse HDSS in sub-Saharan Africa.BMJ global health · 2021Article
- Addressing Ethical Challenges in US-Based HIV Phylogenetic Research.The Journal of infectious diseases · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Public health surveillance by necessity occurs without explicit patient consent. There is strong legal and scientific support for maintaining name-based reporting of infectious diseases and other types of public health surveillance. We present conditions under which surveillance without explicit patient consent is ethically justifiable using principles of contemporary clinical and public health ethics. Overriding individual autonomy must be justified in terms of the obligation of public health to improve population health, reduce inequities, attend to the health of vulnerable and systematically disadvantaged persons, and prevent harm. In addition, data elements collected without consent must represent the minimal necessary interference, lead to effective public health action, and be maintained securely.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.