ArticleJournal of health communication2012
Social and psychological determinants of levels of engagement with an online breast cancer support group: posters, lurkers, and nonusers.
Article in Journal of health communication, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it, 109 citations in OpenAlex.
- Conceptualising engagement with digital behaviour change interventions: a systematic review using principles from critical interpretive synthesis.Translational behavioral medicine · 2017Pooled it
- Use and taxonomy of social media in cancer-related research: a systematic review.American journal of public health · 2014Pooled it
- Engagement of young adult cancer survivors within a Facebook-based physical activity intervention.Translational behavioral medicine · 2017Trial
- Offline Social Relationships and Online Cancer Communication: Effects of Social and Family Support on Online Social Network Building.Health communication · 2017Trial
- How Cancer Patients Use and Benefit from an Interactive Cancer Communication System.Journal of health communication · 2017Trial
- Engagement with a social networking intervention for cancer-related distress.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2015Trial
- Lurking as an active participation process: a longitudinal investigation of engagement with an online cancer support group.Health communication · 2014Trial
- How user characteristics affect use patterns in web-based illness management support for patients with breast and prostate cancer.Journal of medical Internet research · 2013Trial
- Patient Engagement and Symptom Outcomes in a Provider-Guided Online Symptom Management Intervention: Mixed Methods Study.Journal of medical Internet research · 2026Article
- How Cancer Online Support Groups Work, for Whom, and in What Circumstances: Realist Review.Journal of medical Internet research · 2026Review
- Measuring Engagement in Provider-Guided Digital Health Interventions With a Conceptual and Analytical Framework Using Nurse WRITE as an Exemplar: Exploratory Study With an Iterative Approach.JMIR formative research · 2024Article
- Patient listening on social media for patient-focused drug development: a synthesis of considerations from patients, industry and regulators.Frontiers in medicine · 2024Article
- Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study.JMIR formative research · 2022Article
- Intraindividual, Dyadic, and Network Communication in a Digital Health Intervention: Distinguishing Message Exposure from Message Production.Health communication · 2022Article
- Exploring the Relationship Between Usage and Outcomes of an Internet-Based Intervention for Individuals With Depressive Symptoms: Secondary Analysis of Data From a Randomized Controlled Trial.Journal of medical Internet research · 2019Article
- Analyzing Empowerment Processes Among Cancer Patients in an Online Community: A Text Mining Approach.JMIR cancer · 2019Article
- The implementation of web-based cognitive rehabilitation in adult cancer survivors: examining participant engagement, attrition and treatment fidelity.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- Social media for breast cancer survivors: a literature review.Journal of cancer survivorship : research and practice · 2017Review
- The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review.JMIR cancer · 2017Article
- Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey.Journal of medical Internet research · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 6 institutions in 1 country.
Funding
Abstract
Despite the benefits and growing availability of online cancer support groups, many breast cancer patients still do not actively participate in them. To better understand cancer patients' online information- and support-seeking behaviors, this study explores how various social and psychological characteristics predict different levels of engagement with an online breast cancer support group: posters, lurkers, and nonusers. The study sample included 231 recently diagnosed breast cancer patients. Data included baseline survey scores of demographic, disease-related, and psychosocial factors and automatically collected discussion group use data over the 4-month intervention. Patterns of engagement with the cancer support group differed according to the patients' characteristics, suggesting that (a) cancer patients have very different orientations to and engagement with an online support group, and (b) deficits in social and psychological resources may not be barriers to participation in a cancer support group, but rather motivators to interact with other patients. The authors discuss the theoretical and practical implications of their findings.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.