ArticlePersonalized medicine2011
Veterans' experience in using the online Surgeon General's family health history tool.
Article in Personalized medicine, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed.
- Utility of a virtual counselor (VICKY) to collect family health histories among vulnerable patient populations: A randomized controlled trial.Patient education and counseling · 2021Trial
- Acceptability and feasibility of a virtual counselor (VICKY) to collect family health histories.Genetics in medicine : official journal of the American College of Medical Genetics · 2015Trial
- Family History of Kidney Failure, APOL1 Risk Variants, Social Determinants of Health, and Risk of CKD Progression: Findings From the CRIC Study.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2026Observational
- An Innovative Strategy for Collecting Family Health History: An Effectiveness-Implementation Trial in Primary Care Clinics.Annals of family medicine · 2025Article
- The Add Health Parent Study: A Biosocial Resource for the Study of Multigenerational Racial/Ethnic Disparities in Alzheimer's Disease and Alzheimer's Disease-Related Dementias.Journal of Alzheimer's disease : JAD · 2024Article
- Patients Managing Their Medical Data in Personal Electronic Health Records: Scoping Review.Journal of medical Internet research · 2022Article
- Applying theory to characterize impediments to dissemination of community-facing family health history tools: a review of the literature.Journal of community genetics · 2020Review
- Designing and Evaluating a Digital Family Health History Tool for Spanish Speakers.International journal of environmental research and public health · 2019Article
- Review and Comparison of Electronic Patient-Facing Family Health History Tools.Journal of genetic counseling · 2018Review
- Challenges with Collecting Smoking Status in Electronic Health Records.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2017Article
- Community-Based Family Health History Education: The Role of State Health Agencies in Engaging Medically Underserved Populations in Understanding Genomics and Risk of Chronic Disease.Healthcare (Basel, Switzerland) · 2015Article
- Collecting Family Health History using an Online Social Network: a Nationwide Survey among Potential Users.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2015Article
- Evaluation of a novel electronic genetic screening and clinical decision support tool in prenatal clinical settings.Maternal and child health journal · 2014Article
- Improving learning about familial risks using a multicomponent approach: the GRACE program.Personalized medicine · 2013Article
- A classification of errors in lay comprehension of medical documents.Journal of biomedical informatics · 2012Article
- User experience of a family health history chatbot: A quantitative analysis.Health informatics journalArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
aimTo assess veterans' experience and satisfaction in using the Surgeon General's (SG) online family health history (FHH) tool, and determine the perceived facilitators and barriers to using the online SG-FHH tool. MATERIALS #ENTITYSTARTX00026;
methodsA mixed-method using both qualitative and quantitative approaches was employed in this study. A total of 35 veterans at the VA Medical Center in San Antonio, Texas, USA were invited to enter their FHH information using the online SG-FHH tool, complete the study's satisfaction survey and participate in a short semi-structured interview. The goal of the semi-structured interviews was to assess participants perceived facilitators and barriers to using the online SG-FHH tool. All participants were also provided with a printed copy of their pedigree, which was generated by the SG-FHH tool and were encouraged to share it with their relatives and providers.
resultsThe majority of participants (91%) said that they had access to a computer with internet capability and 77% reported that they knew how to use a computer. More than two-thirds of the participants felt that items on the SG-FHH tool were easy to read and felt that FHH categories were relevant to their family's health. Approximately 94% of participants viewed the SG-FHH tool as useful, and the majority of participants (97%) indicated that they were likely to recommend the tool to others. Content analysis of the semi-structured interviews highlighted several barriers to veterans' use of the SG-FHH tool and their FHH information. These included: lack of patients' knowledge regarding their relatives' FHH, and privacy and confidentiality concerns.
conclusionThis study provides information on the performance and functionality of an inexpensive and widely accessible method for FHH collection. Furthermore, our findings highlight several opportunities and challenges facing the utilization of FHH information as a clinical and genomic tool at the Veterans Health Administration (VHA). The results suggest that strategies that improve veterans' knowledge regarding the importance of their FHH information and that address their concerns about privacy and confidentiality may enhance the successful implementation of FHH information into VHA clinical practice. IMPLICATIONS: identifying a locally accepted method for FHH collection and documentation which can be conducted outside of the patient visit will reduce time burdens for providers and patients and allow for a focus on other important topics during clinic visits. Improvement in familial risk screening and assessment will enable the VHA to be prepared for personalized medicine and focus their resources on promoting critically important health behaviors for populations with the highest risk of developing chronic diseases and their complications.
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.