ArticleHealth expectations : an international journal of public participation in health care and health policy2014
Developing written information on osteoarthritis for patients: facilitating user involvement by exposure to qualitative research.
Article in Health expectations : an international journal of public participation in health care and health policy, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 22 citations in OpenAlex.
- Implementing core NICE guidelines for osteoarthritis in primary care with a model consultation (MOSAICS): a cluster randomised controlled trial.Osteoarthritis and cartilage · 2018Trial
- Effect of a model consultation informed by guidelines on recorded quality of care of osteoarthritis (MOSAICS): a cluster randomised controlled trial in primary care.Osteoarthritis and cartilage · 2017Trial
- A nurse-led clinic for patients consulting with osteoarthritis in general practice: development and impact of training in a cluster randomised controlled trial.BMC family practice · 2016Trial
- Implementing the NICE osteoarthritis guidelines: a mixed methods study and cluster randomised trial of a model osteoarthritis consultation in primary care--the Management of OsteoArthritis In Consultations (MOSAICS) study protocol.Implementation science : IS · 2014Trial
- Resistance or appropriation?: Uptake of exercise after a nurse-led intervention to promote self-management for osteoarthritis.Health (London, England : 1997) · 2022Article
- Article
- Challenges and controversies of complex interventions in osteoarthritis management: recognizing inappropriate and discordant care.Rheumatology (Oxford, England) · 2018Review
- Patients' perceived needs of osteoarthritis health information: A systematic scoping review.PloS one · 2018Article
- Patient involvement in the development of a handbook for moderate rheumatoid arthritis.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Patient-reported quality indicators for osteoarthritis: a patient and public generated self-report measure for primary care.Research involvement and engagement · 2016Article
- Acceptability of a 'guidebook' for the management of Osteoarthritis: a qualitative study of patient and clinician's perspectives.BMC musculoskeletal disorders · 2014Article
- Development of a behaviour change intervention: a case study on the practical application of theory.Implementation science : IS · 2014Article
- Patient-centred care and patient and public involvement.Health expectations : an international journal of public participation in health care and health policy · 2014Article
- Sustaining patient and public involvement in research: A case study of a research centre.Journal of care services management · 2013Article
- Web-based information for pregnant women and new mothers with type 1 diabetes--a description of the development process.BMC medical informatics and decision making · 2012Article
Corrections and comments
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Authors and funding
2 authors at 1 institution in 1 country.
Funding
Abstract
introductionIn developing a guidebook on osteoarthritis (OA), we collaborated with people who have chronic joint pain (users). But to advise, users need to be aware of and sensitive about their own state of knowledge and educationalists argue that adults sometimes lack such awareness. This paper will report on our experience of providing users with findings from qualitative research to increase awareness of their level of knowledge.
methodA summary of the results from qualitative research into people's experiences of living with chronic pain was sent to individual members of two groups of users. It was then used to structure group meetings held to help identify information needed for the guidebook.
findingsSome users found the summary difficult to read and suggested how to simplify it. Nevertheless, it helped most users to become aware of the experiences and views of others who have OA and thus become more sensitive to their own level of knowledge. It also helped them recall experiences that stimulated practical suggestions for managing joint pain in everyday life and provided a way of gently challenging the views of users when they appeared to assume that their views were widely held. The discussions brought to light gaps in the research literature.
conclusionWe believe this way of involving users by exposing them to qualitative research findings about lay experiences of living with OA effectively facilitated the users' contributions to the needs of those who have to live with OA, and we believe it has wider applications.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.