Evidence map›Paper›PMID 22048932›Full record

ReviewQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2012

Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations.

Claire F Snyder, Neil K Aaronson, Ali K Choucair, Thomas E Elliott, Joanne Greenhalgh, Michele Y Halyard, Rachel Hess, Deborah M Miller, Bryce B Reeve, Maria Santana

2 registry-linked trialsAbstract readReview
PubMed Publisher
In one paragraph

Review in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 445 papers, 7 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
445citing papers in PubMed, 7 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04373681 completednot on this mapstarted 2017, after this paper: background citation

Validity and Reliability of the Turkish Version of Western Ontario Osteoarthritis of the Shoulder Index

TypeobservationalSponsorGazi UniversityRan2017 to 2020Enrolled68ConditionsEvaluating the Validity and Reliability of the Turkish WOOSArmspatient-administered questionnaires
NCT04954053 completednot on this mapstarted 2017, after this paper: background citation

Validity and Reliability of the Turkish Version of Wheelchair User's Shoulder Pain Index

Typeobservational_patient_registrySponsorGazi UniversityRan2017 to 2017Enrolled100ConditionsShoulder Pain
3 · Its place in the literature

Who cites it

445 citing papers in PubMed, 7 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Patient-reported outcome measurement implementation in cancer survivors: a systematic review.Journal of cancer survivorship : research and practice · 2024
    Pooled it
  4. Pooled it
  5. Pooled it
  6. Perceived benefits and limitations of using patient-reported outcome measures in clinical practice with individual patients: a systematic review of qualitative studies.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
    Pooled it
  7. Pooled it
  8. Trial
  9. Trial
  10. Trial
  11. Trial
  12. Trial
  13. Trial
  14. Trial
  15. Review
  16. Implementation of patient-reported outcome measures in oncology practice: a communication-centered qualitative study on patient and healthcare professional perspectives.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  17. Article
  18. Review
  19. Review
  20. Article

385 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Claire F SnyderJohns Hopkins School of Medicine, 624 N. Broadway, Room 657, Baltimore, MD 21205, USA. csnyder@jhsph.edu
Neil K Aaronson
Ali K Choucair
Thomas E Elliott
Joanne Greenhalgh
Michele Y Halyard
Rachel Hess
Deborah M Miller
Bryce B Reeve
Maria Santana

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeWhile clinical care is frequently directed at making patients "feel better," patients' reports on their functioning and well-being (patient-reported outcomes [PROs]) are rarely collected in routine clinical practice. The International Society for Quality of Life Research (ISOQOL) has developed a User's Guide for Implementing Patient-Reported Outcomes Assessment in Clinical Practice. This paper summarizes the key issues from the User's Guide.

methodsUsing the literature, an ISOQOL team outlined considerations for using PROs in clinical practice; options for designing the intervention; and strengths, weaknesses, and resource requirements associated with each option.

resultsImplementing routine PRO assessment involves a number of methodological and practical decisions, including (1) identifying the goals for collecting PROs in clinical practice, (2) selecting the patients, setting, and timing of assessments, (3) determining which questionnaire(s) to use, (4) choosing a mode for administering and scoring the questionnaire, (5) designing processes for reporting results, (6) identifying aids to facilitate score interpretation, (7) developing strategies for responding to issues identified by the questionnaires, and (8) evaluating the impact of the PRO intervention on the practice.

conclusionsIntegrating PROs in clinical practice has the potential to enhance patient-centered care. The online version of the User's Guide will be updated periodically.

Indexed as

Practice Patterns, Physicians'Research DesignSelf ReportGoalsHumansOutcome Assessment, Health CareQuality of LifeSurveys and Questionnaires

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.