ArticleBritish journal of cancer2011
Integrating cancer survivors' experiences into UK cancer registries: design and development of the ePOCS system (electronic Patient-reported Outcomes from Cancer Survivors).
Article in British journal of cancer, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
What it found
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Process mapping in healthcare: a systematic review.BMC health services research · 2021Pooled it
- Cancer survivorship monitoring systems for the collection of patient-reported outcomes: a systematic narrative review of international approaches.Journal of cancer survivorship : research and practice · 2017Pooled it
- Electronic patient-reported adverse event monitoring in academic early-phase clinical trials: A feasibility study.Clinical trials (London, England) · 2026Article
- Article
- Operational Feasibility of Hospital-Based Cancer Registries in Low- and Middle-Income Countries: A Systematic Review.Cureus · 2023Review
- Article
- Determining the Suitability of Registries for Embedding Clinical Trials in the United States: A Project of the Clinical Trials Transformation Initiative.Therapeutic innovation & regulatory science · 2021Review
- Article
- Social Media Use for Cancer Education at a Community-Based Cancer Center in South Korea.Journal of cancer education : the official journal of the American Association for Cancer Education · 2018Article
- Patients reported outcomes in thoracic surgery.Journal of thoracic disease · 2018Article
- Patient reported outcomes following video assisted thoracoscopic (VATS) resection or stereotactic ablative body radiotherapy (SABR) for treatment of non-small cell lung cancer: protocol for an observational pilot study (LiLAC).Journal of thoracic disease · 2017Article
- Health services research of integrative oncology in palliative care of patients with advanced pancreatic cancer.BMC cancer · 2016Observational
- Empowerment of Cancer Survivors Through Information Technology: An Integrative Review.Journal of medical Internet research · 2015Review
- Costs of cancer care for use in economic evaluation: a UK analysis of patient-level routine health system data.British journal of cancer · 2015Article
- Development of MijnAVL, an Interactive Portal to Empower Breast and Lung Cancer Survivors: An Iterative, Multi-Stakeholder Approach.JMIR research protocols · 2015Article
- Cognitive interviewing of the US National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2014Article
- Integrating patient reported outcomes with clinical cancer registry data: a feasibility study of the electronic Patient-Reported Outcomes From Cancer Survivors (ePOCS) system.Journal of medical Internet research · 2013Article
- How do doctors refer to patient-reported outcome measures (PROMS) in oncology consultations?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2013Article
- Review
- Patient-reported outcomes of cancer survivors in England 1-5 years after diagnosis: a cross-sectional survey.BMJ open · 2013Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
backgroundUnderstanding the psychosocial challenges of cancer survivorship, and identifying which patients experience ongoing difficulties, is a key priority. The ePOCS (electronic patient-reported outcomes from cancer survivors) project aims to develop and evaluate a cost-efficient, UK-scalable electronic system for collecting patient-reported outcome measures (PROMs), at regular post-diagnostic timepoints, and linking these with clinical data in cancer registries.
methodsA multidisciplinary team developed the system using agile methods. Design entailed process mapping the system's constituent parts, data flows and involved human activities, and undertaking usability testing. Informatics specialists built new technical components, including a web-based questionnaire tool and tracking database, and established component-connecting data flows. Development challenges were overcome, including patient usability and data linkage and security.
resultsWe have developed a system in which PROMs are completed online, using a secure questionnaire administration tool, accessed via a public-facing website, and the responses are linked and stored with clinical registry data. Patient monitoring and communications are semiautomated via a tracker database, and patient correspondence is primarily Email-based. The system is currently honed for clinician-led hospital-based patient recruitment.
conclusionsA feasibility test study is underway. Although there are possible challenges to sustaining and scaling up ePOCS, the system has potential to support UK epidemiological PROMs collection and clinical data linkage.
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Registered trials
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