ArticleBritish journal of cancer2011
A qualitative study of unmet needs and interactions with primary care among cancer survivors.
Article in British journal of cancer, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 4 of them syntheses that pooled it.
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Who cites it
34 citing papers in PubMed, 4 syntheses or guidelines pooled it, 77 citations in OpenAlex.
- Associations Between Breast Cancer Survivorship and Adverse Mental Health Outcomes: A Systematic Review.Journal of the National Cancer Institute · 2018Pooled it
- The role of the GP in follow-up cancer care: a systematic literature review.Journal of cancer survivorship : research and practice · 2016Pooled it
- Recent Worldwide Developments in eHealth and mHealth to more Effectively Manage Cancer and other Chronic Diseases - A Systematic Review.Yearbook of medical informatics · 2016Pooled it
- Health care needs of cancer survivors in general practice: a systematic review.BMC family practice · 2014Pooled it
- Cardiovascular Disease Meets Cancer: Exploring the Epidemiology in China and Homotherapy Targeting Intersectional Mechanisms.Advanced science (Weinheim, Baden-Wurttemberg, Germany) · 2025Review
- Article
- Acceptability and Feasibility of Survivorship Group Medical Visits for Breast Cancer Survivors in a Safety Net Hospital.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024Article
- Mapping the supportive care needs and quality of life of adult survivors of childhood cancer at a comprehensive cancer center in the Middle East.Scientific reports · 2024Article
- "Somebody was standing in my corner": a mixed methods exploration of survivor, coach, and hospital staff perspectives and outcomes in an Australian cancer survivorship program.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Primary care physicians' perceptions concerning engagement in cancer survivor care.Journal of general and family medicine · 2022Article
- Article
- A study of elite sport-inspired coaching for patients after allogeneic hematopoietic stem cell transplantation.Bone marrow transplantation · 2021Article
- How are emotional distress and reassurance expressed in medical consultations for people with long-term conditions who were unable to receive curative treatment? A pilot observational study with huntington's disease and prostate cancer.Pilot and feasibility studies · 2021Article
- Stress, coping strategies and expectations among breast cancer survivors in China: a qualitative study.BMC psychology · 2021Article
- Socio-economic and demographic predictors of unmet need for contraception among young women in sub-Saharan Africa: evidence from cross-sectional surveys.Reproductive health · 2020Article
- Exploring the experiences of patients, general practitioners and oncologists of prostate cancer follow-up: A qualitative interview study.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2020Article
- Evaluation of Factors Associated With Unmet Needs in Adult Cancer Survivors in Canada.JAMA network open · 2020Article
- Article
- NCCN Guidelines Insights: Survivorship, Version 2.2019.Journal of the National Comprehensive Cancer Network : JNCCN · 2019Article
- Experiences with late effects-related care and preferences for long-term follow-up care among adult survivors of childhood lymphoma.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2017Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
introductionDespite increasing numbers, there is little research investigating the long-term needs of cancer survivors. The aim of this study is to explore the experiences of individuals who have survived at least 5 years following a cancer diagnosis, and to describe perceived unmet needs and interactions with primary care.
methodsForty long-term survivors of breast, colorectal and prostate cancer were purposively selected for an in-depth qualitative study. We aimed for a maximum variation sample according to cancer site, gender, time since diagnosis, cancer needs, anxiety and depression. Interviews were audio recorded and transcribed verbatim. Transcripts were coded thematically using a grounded theory approach.
resultsAnalysis of the interview data is presented in four subthemes: the role they perceived for the general practitioner (GP), unmet needs, reasons for not using primary care for needs they perceived as cancer related, and ongoing care for cancer-related issues. The majority of cancer survivors did not see a role for their GP in their long-term care related to their cancer diagnosis as most considered that they did not need active follow-up, but some expressed a need for psychological services and information on possible long-term effects. Cancer survivors cited three main reasons for not using GP services in relation to their cancer diagnosis: GPs were seen as non-experts in cancer; they were perceived as too busy; and a lack of continuity within primary care made it difficult to talk about long-term issues. There was a wide variation in schedules and notification of PSA tests among the prostate cancer survivors. DISCUSSION: The results from this project suggest that some cancer survivors have specific emotional and physical needs that could benefit from input from their primary care team, but not all cancer survivors look to their GP for their long-term cancer-related care. Better information care planning is required from specialists in order to identify those who would benefit most.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.