ArticleGenome medicine2011
Developing and implementing an institute-wide data sharing policy.
Article in Genome medicine, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Responsible data sharing in international health research: a systematic review of principles and norms.BMC medical ethics · 2019Pooled it
- A digital archive reveals how a funding agency cooperated with academics to support the nascent field of genomics.Nature communications · 2026Article
- Ethics practices associated with reusing health data: an assessment of patient registries.BMC medicine · 2024Article
- Data sharing practices and data availability upon request differ across scientific disciplines.Scientific data · 2021Article
- Considerations for an integrated population health databank in Africa: lessons from global best practices.Wellcome open research · 2021Article
- Comprehensive genome analyses ofMicrobial genomics · 2020Article
- Brief introduction of medical database and data mining technology in big data era.Journal of evidence-based medicine · 2020Review
- What incentives increase data sharing in health and medical research? A systematic review.Research integrity and peer review · 2017Review
- Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts.European journal of human genetics : EJHG · 2016Article
- Evolving data access policy: The Canadian context.Facets (Ottawa) · 2016Article
- "You want the right amount of oversight": interviews with data access committee members and experts on genomic data access.Genetics in medicine : official journal of the American College of Medical Genetics · 2016Article
- Article
- 'Pop-Up' Governance: developing internal governance frameworks for consortia: the example of UK10K.Life sciences, society and policy · 2015Article
- Biomedical Data Sharing and Reuse: Attitudes and Practices of Clinical and Scientific Research Staff.PloS one · 2015Article
- A human rights approach to an international code of conduct for genomic and clinical data sharing.Human genetics · 2014Article
- Data sharing policy design for consortia: challenges for sustainability.Genome medicine · 2014Article
- Implementing a successful data-management framework: the UK10K managed access model.Genome medicine · 2013Article
- Ten simple rules for cultivating open science and collaborative R&D.PLoS computational biology · 2013Article
- Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).PLoS computational biology · 2012Article
- Sensing the (digital) pulse. Future steps for improving the secondary use of data for research in Switzerland.Digital healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The Wellcome Trust Sanger Institute has a strong reputation for prepublication data sharing as a result of its policy of rapid release of genome sequence data and particularly through its contribution to the Human Genome Project. The practicalities of broad data sharing remain largely uncharted, especially to cover the wide range of data types currently produced by genomic studies and to adequately address ethical issues. This paper describes the processes and challenges involved in implementing a data sharing policy on an institute-wide scale. This includes questions of governance, practical aspects of applying principles to diverse experimental contexts, building enabling systems and infrastructure, incentives and collaborative issues.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.