ArticleResearch in nursing & health2011
Factors associated with parental perception of child vulnerability 12 months after abnormal newborn screening results.
Article in Research in nursing & health, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022.Orphanet journal of rare diseases · 2026Pooled it
- Assessment of Parental Needs and Quality of Life in Children with a Rare Neuromuscular Disease (Pompe Disease): A Quantitative-Qualitative Study.Behavioral sciences (Basel, Switzerland) · 2023Article
- Parental experiences in neonatal intensive care unit in Ethiopia: a phenomenological study.Annals of medicine · 2022Article
- Psychosocial Issues Related to Newborn Screening: A Systematic Review and Synthesis.International journal of neonatal screening · 2022Review
- Congenital Adrenal Hyperplasia-Current Insights in Pathophysiology, Diagnostics, and Management.Endocrine reviews · 2022Review
- Newborn screening for cystic fibrosis: Role of primary care providers in caring for infants with positive screening results.Canadian family physician Medecin de famille canadien · 2021Article
- Prematurity and Maladaptive Mealtime Dynamics: the Roles of Maternal Emotional Distress, Eating-Related Cognitions, and Mind-Mindedness.Journal of abnormal child psychology · 2020Article
- The Impact of the CFTR Gene Discovery on Cystic Fibrosis Diagnosis, Counseling, and Preventive Therapy.Genes · 2020Review
- Parental Perceptions of Child Vulnerability in Families of Youth With Spina Bifida: the Role of Parental Distress and Parenting Stress.Journal of pediatric psychology · 2018Article
- Factors affecting parent-child relationships one year after positive newborn screening for cystic fibrosis or congenital hypothyroidism.Journal of developmental and behavioral pediatrics : JDBP · 2015Article
- Long-term follow-up of cystic fibrosis newborn screening: psychosocial functioning of adolescents and young adults.Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society · 2014Article
- Maternal Self-rated Capability Status and Its Association with Under-Five Children Morbidity.Journal of primary care & community healthArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
We identified factors associated with elevated parental perceptions of child vulnerability (PPCV) 12 months after newborn screening (NBS) of 136 children: healthy, normal results (H, n = 37), cystic fibrosis carriers (CF-C, n = 40), congenital hypothyroidism (CH, n = 36), and cystic fibrosis (CF, n = 23). Controlling for infant and parent characteristics, mixed logit structural equation modeling showed direct paths to elevated PPCV included parent female sex, CF diagnosis, and high documented illness frequency. PPCV was positively associated with maternal parenting stress. Infants with CF and CF carriers had significantly more documented illness frequency than H group infants. The CH group did not differ significantly from the H group and had no paths to PPCV. Unexpectedly high documented illness frequency among infants who are CF carriers warrants further investigation.
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