ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2012
Measuring outcomes in Parkinson's disease: a multi-perspective concept mapping study.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 44 citations in OpenAlex.
- GLP-1 receptor agonists for Parkinson's disease.The Cochrane database of systematic reviews · 2020Pooled it
- Social role functioning in Parkinson's disease: A mixed-methods systematic review.International journal of geriatric psychiatry · 2019Pooled it
- GLP-1 receptor agonists in Parkinson's disease: an updated comprehensive systematic review with meta-analysis.Diabetology & metabolic syndrome · 2025Review
- Article
- Measuring What Matters in Parkinson's Disease Research and Dysphagia: The Need for Core Outcome Sets.Movement disorders : official journal of the Movement Disorder Society · 2025Article
- Core outcomes for speech-language services in Ontario schools: a group concept mapping study and guiding framework.BMC health services research · 2024Article
- Development of a Core Outcome Set for Dysphagia Interventions in Parkinson's disease (COS-DIP): study protocol.BMJ open · 2024Article
- Minimal clinically important differences of spatiotemporal gait variables in Parkinson disease.Gait & posture · 2024Article
- Head and neck cancer treatment outcome priorities: A multi-perspective concept mapping study.PloS one · 2023Article
- Novel insights regarding the measurement properties of the SCOPA-AUT.BMC neurology · 2022Article
- A Social Media Listening Study to Understand the Unmet Needs and Quality of Life in Adult and Pediatric Amblyopia Patients.Ophthalmology and therapy · 2022Article
- Article
- Walking on common ground: a cross-disciplinary scoping review on the clinical utility of digital mobility outcomes.NPJ digital medicine · 2021Article
- Dance Is an Accessible Physical Activity for People with Parkinson's Disease.Parkinson's disease · 2021Review
- Social Media Listening to Understand the Lived Experience of Presbyopia: Systematic Search and Content Analysis Study.Journal of medical Internet research · 2020Article
- Fourteen years of quality improvement education in healthcare: a utilisation-focused evaluation using concept mapping.BMJ open quality · 2019Article
- Worth a thousand words? Visual concept mapping of the quality of life of people with severe mental health problems.International journal of methods in psychiatric research · 2018Article
- Precision Medicine in Parkinson's Disease - Exploring Patient-Initiated Self-Tracking.Journal of Parkinson's disease · 2018Article
- A comparison of three methods to generate a conceptual understanding of a disease based on the patients' perspective.Journal of patient-reported outcomes · 2017Article
- Developing human rights based indicators to support country monitoring of rehabilitation services and programmes for people with disabilities: a study protocol.BMC international health and human rights · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson's disease (PD) trials, from the perspectives of health care professionals and people with PD.
methodWe used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis).
resultsNinety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive and executive functioning; and Emotions were the most homogenous. Statements within clusters representing Energy and abilities; Autonomic dysfunctions; Sensory, speech and swallowing problems; and Neuropsychiatric symptoms also related to statements outside their respective clusters. Clusters rated most important were Participation and Mobility and motor functioning, and the highest rated items were quality of life, walking ability, and sleeping problems.
conclusionBy the use of concept mapping, a multi-perspective conceptual map of prioritized aspects for the outcome measurement in PD was defined. These findings provide an initial conceptual basis toward improved outcome measurement priorities in clinical PD trials.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.