ArticleScandinavian journal of primary health care2011
Who is the key worker in palliative home care?
Article in Scandinavian journal of primary health care, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed.
- Experiences of healthcare professionals providing palliative care in home settings - a scoping review.BMC palliative care · 2025Article
- Put on the sidelines of palliative care: a qualitative study of important barriers to GPs' participation in palliative care and guideline implementation in Norway.Scandinavian journal of primary health care · 2024Article
- Finding their place - general practitioners' experiences with palliative care-a Norwegian qualitative study.BMC palliative care · 2022Article
- Discordance and concordance on perception of quality care at end of life between older patients, caregivers and clinicians: a scoping review.European geriatric medicine · 2022Article
- Listening to Caregivers' Voices: The Informal Family Caregiver Burden of Caring for Chronically Ill Bedridden Elderly Patients.International journal of environmental research and public health · 2022Article
- Palliative care in general practice; a questionnaire study on the GPs role and guideline implementation in Norway.BMC family practice · 2021Article
- GPs' perspective on End-of-Life Care - an evaluation based on the German version of the General Practice End of Life Care Index.German medical science : GMS e-journal · 2020Article
- Article
- Development, modelling, and pilot testing of a complex intervention to support end-of-life care provided by Danish general practitioners.BMC family practice · 2018Article
- Danish general practitioners' self-reported competences in end-of-life care.Scandinavian journal of primary health care · 2016Article
- Written survey on recently deceased patients in germany and switzerland: how do general practitioners see their role?BMC health services research · 2016Article
- Preparing general practitioners to receive cancer patients following treatment in secondary care: a qualitative study.BMC health services research · 2015Article
- Are Cancer Patients' Socioeconomic and Cultural Factors Associated with Contact to General Practitioners in the Last Phase of Life?International journal of family medicine · 2015Article
- Burden for family carers at the end of life; a mixed-method study of the perspectives of family carers and GPs.BMC palliative care · 2014Article
- Coordination of care for individuals with advanced progressive conditions: a multi-site ethnographic and serial interview study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2013Article
- Use of general practice, diagnostic investigations and hospital services before and after cancer diagnosis - a population-based nationwide registry study of 127,000 incident adult cancer patients.BMC health services research · 2012Article
- PalliPA: How can general practices support caregivers of patients at their end of life in a home-care setting? A study protocol.BMC research notes · 2012Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivePalliative home care involves coordination of care between the professionals involved. The NICE guideline on supportive and palliative care (UK) recommends that teams, regardless of their base, should promote continuity for patients. This may involve nomination of a coordinating "key worker". This study aimed to explore who acts as key worker and who ought to take on this role in the views of patients, relatives, and primary care professionals. Furthermore, it aimed to explore the level of agreement on this issue between study participants.
designInterview and questionnaire study.
settingFormer County of Aarhus, Denmark (2008-2009). SUBJECTS: Ninety-six terminally ill cancer patients, their relatives, general practitioners (GPs), and community nurses (CNs).
main outcome measuresActual key worker as valued by patients, relatives, and primary care professionals; ideal key worker as valued by patients and relatives. RESULTS. Patients, relatives, GPs, and CNs most often saw themselves as having been the key worker. When asked about the ideal key worker, most patients (29%; 95%CI: 18;42) and relatives (32%; 95%CI: 22;45) pointed to the GP. Using patients' views as reference, we found very limited agreement with relatives (47.7%; k = 0.05), with GPs (30.4%; k = 0.01) and with CNs (25.0%; k = 0.04). Agreement between patients and relatives on the identity of the ideal key worker was of a similar dimension (29.6%; k = 0.11).
conclusionPoor agreement between patients, relatives, and professionals on actual and ideal key worker emphasizes the need for matching expectations and clear communication about task distribution in palliative home care.
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