ArticleJournal of participatory medicine2011
Implementing an Interoperable Personal Health Record in Pediatrics: Lessons Learned at an Academic Children's Hospital.
Article in Journal of participatory medicine, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04480255 (NICU2HOME+), which is not on this map. Cited by 8 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
NICU2HOME+: Supporting Illinois Families of Premature Infants With Smartphone Technology
Who cites it
8 citing papers in PubMed.
- Designing an interoperable patient portal to augment an Advanced Nurse Practitioner service for Children with hydrocephalus.International journal of nursing studies advances · 2024Article
- Sociotechnical Drivers and Barriers in the Consumer Adoption of Personal Health Records: Empirical Investigation.JMIR medical informatics · 2021Article
- Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis.Journal of medical Internet research · 2021Review
- Understanding of and Barriers to Electronic Health Record Patient Portal Access in a Culturally Diverse Pediatric Population.JMIR medical informatics · 2019Article
- Legal and regulatory considerations associated with use of patient-generated health data from social media and mobile health (mHealth) devices.Applied clinical informatics · 2015Review
- Paediatric models in motion: requirements for model-based decision support at the bedside.British journal of clinical pharmacology · 2015Review
- Impact of an EMR-Based Daily Patient Update Letter on Communication and Parent Engagement in a Neonatal Intensive Care Unit.Journal of participatory medicine · 2012Article
- Neonatal Informatics: Transforming Neonatal Care Through Translational Bioinformatics.NeoReviews · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
This paper describes the development of an innovative health information technology creating a bidirectional link between the electronic medical record (EMR) of an academic children's hospital and a commercially available, interoperable personal health record (PHR). The goal of the PHR project has been to empower pediatric patients and their families to play a more active role in understanding, accessing, maintaining, and sharing their personal health information to ultimately improve health outcomes. The most notable challenges proved more operational and cultural than technological. Our experience demonstrates that an interoperable PHR is technically and culturally achievable at a pediatric academic medical center. Recognizing the complex social, cultural, and organizational contexts of these systems is important for overcoming barriers to a successful implementation.
Identifiers
21853160PMC3156478What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.