ArticleHealth expectations : an international journal of public participation in health care and health policy2013
Same description, different values. How service users and providers define patient and public involvement in health care.
Article in Health expectations : an international journal of public participation in health care and health policy, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
37 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- Participatory approaches in the development of health interventions for migrants: a systematic review.BMJ open · 2021Pooled it
- Trial
- The short-term effect on alliance and satisfaction of using patient feedback scales in mental health out-patient treatment. A randomised controlled trial.BMC health services research · 2012Trial
- Exploring how patient involvement is enacted in the Swedish national system for knowledge-driven management - "work as imagined and work as done".BMC health services research · 2026Article
- Perspectives of user groups in the co-creation of a targeted dental care service intervention for older adults receiving home healthcare: an explorative study.BMC health services research · 2025Article
- Challenges in using patient involvement principles in substance use treatment.International journal of qualitative studies on health and well-being · 2023Article
- Patient engagement in the development and delivery of healthcare services: a systematic scoping review.BMJ open quality · 2023Article
- Organisation, influence, and impact of patient advisory boards in rehabilitation institutions-an explorative cross-sectional study.BMC musculoskeletal disorders · 2022Article
- The mutual benefits of patient and public involvement in research: an example from a feasibility study (MoTaStim-Foot).Research involvement and engagement · 2021Article
- Conceptualizing patient participation in psychiatry: A survey describing the voice of patients in outpatient care.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Innovating on Inhaled Bioequivalence: A Critical Analysis of the Current Limitations, Potential Solutions and Stakeholders of the Process.Pharmaceutics · 2021Review
- User involvement in interprofessional team meetings within services for substance use disorders.Nordisk alkohol- & narkotikatidskrift : NAT · 2021Article
- Beneficial self-management support and user involvement in Healthy Life Centres-A qualitative interview study in persons afflicted by overweight or obesity.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- The Limits of Empowerment: How to Reframe the Role of mHealth Tools in the Healthcare Ecosystem.Science and engineering ethics · 2020Article
- Minding the gap: identifying values to enable public and patient involvement at the pre-commencement stage of research projects.Research involvement and engagement · 2020Article
- Health-care professionals' experiences of patient participation among older patients in intermediate care-At the intersection between profession, market and bureaucracy.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- What patient involvement means to new patients at two HIV clinics: A longitudinal, qualitative study.Patient education and counseling · 2019Article
- Respect, trust and continuity: A qualitative study exploring service users' experience of involvement at a Healthy Life Centre in Norway.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- Consumer Perspectives of Safewards Impact in Acute Inpatient Mental Health Wards in Victoria, Australia.Frontiers in psychiatry · 2019Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient and public involvement in health care is important, but the existing definitions of the concept do not integrate the stakeholders' own perceptions.
objectiveTo investigate and compare service users' and service providers' own definitions of patient and public involvement and their implications. DESIGN, SETTING AND
participantsQualitative study with mainly individual in-depth semi-structured interviews conducted between June 2007 and June 2009. Data were analysed using a grounded theory approach.
resultsA total of 20 patients, 13 public representatives and 44 health service providers/managers in both somatic and mental health care were interviewed. A common definition of patient and public involvement emerged: It is founded on mutual respect, carried out through dialogue aiming at achieving shared decision making. Nevertheless, users and providers assigned different values to the core aspects: Respect was imperative for service users and implied for providers, dialogue was a way to gain respect for service users and to achieve good outcome for providers, and both worried that the other party wanted to make sole decisions.
conclusionsUsers and providers need to consider that although they have a common definition of involvement in health care, they assign different values to its aspects. Increasing and improving patient and public involvement therefore requires knowledge on and dialogue between the parties about these differences.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.