ArticleJournal of genetic counseling2012
Sources of uncertainty about daughters' breast cancer risk that emerge during genetic counseling consultations.
Article in Journal of genetic counseling, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 54 citations in OpenAlex.
- Implementing a chatbot to promote hereditary breast & ovarian cancer genetic screening in women's health: identifying barriers and facilitators to screening adoption.BMC public health · 2025Article
- Information needs persist after genetic counseling and testing for BRCA1/2 and Lynch Syndrome.Breast cancer research and treatment · 2024Article
- Personal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia.American journal of health promotion : AJHP · 2024Article
- Understanding parents uncertainty sources and management strategies while caring for a child diagnosed with a hematologic cancer.PEC innovation · 2023Article
- Previvorship Posting: Why Breast Cancer Previvors Share Their Stories on Social Media.Health communication · 2023Article
- Article
- Feasibility, acceptability, and outcomes of a pilot intervention facilitating communication about family building between patients with inherited cancer risk and their partners.PEC innovation · 2022Article
- Motivating cascade testing for familial hypercholesterolemia: applying the extended parallel process model for clinician communication.Translational behavioral medicine · 2022Article
- Patient experiences align with the familial hypercholesterolemia global call to action.American journal of preventive cardiology · 2022Article
- A Content Analysis of Social Support Messages about Environmental Breast Cancer Risk within Blogs for Mothers.Health communication · 2021Article
- How does genetic testing influence anxiety, depression, and quality of life? A hereditary breast and ovarian cancer syndrome suspects trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Blood cancer caregiving during COVID-19: understanding caregivers' needs.Translational behavioral medicine · 2021Article
- Sharing genetic test results with family members of BRCA, PALB2, CHEK2, and ATM carriers.Patient education and counseling · 2021Article
- PGx in psychiatry: Patients' knowledge, interest, and uncertainty management preferences in the context of pharmacogenomic testing.Patient education and counseling · 2021Article
- Referencing BRCA in hereditary cancer risk discussions: In search of an anchor in a sea of uncertainty.Journal of genetic counseling · 2020Article
- Helping Mothers and Daughters Talk about Environmental Breast Cancer Risk and Risk-Reducing Lifestyle Behaviors.International journal of environmental research and public health · 2020Article
- Partnering With Mommy Bloggers to Disseminate Breast Cancer Risk Information: Social Media Intervention.Journal of medical Internet research · 2019Article
- Communicating with Daughters About Familial Risk of Breast Cancer: Individual, Family, and Provider Influences on Women's Knowledge of Cancer Risk.Journal of women's health (2002) · 2018Article
- "I Don't Want to Be an Ostrich": Managing Mothers' Uncertainty during BRCA1/2 Genetic Counseling.Journal of genetic counseling · 2017Article
- Communication Between Breast Cancer Patients Who Received Inconclusive Genetic Test Results and Their Daughters and Sisters Years After Testing.Journal of genetic counseling · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Uncertainty is central to the experience of genetic decision making and counseling about cancer risk. Women seeking genetic counseling about their breast cancer risk may experience a great deal of uncertainty about issues related to their daughters. We used a theory of Communication and Uncertainty Management to guide analysis of sources of uncertainty about daughters that emerged during 16 video-recorded and transcribed conversations between mothers at risk for a BRCA 1/2 mutation and their genetic healthcare practitioners. An interpretive design and constant comparative method revealed three dominant patterns or themes representing sources of uncertainty mothers have relating to their daughters: disease risk, future cancer screening, and communication of related information to daughters. Both practitioners and mothers discussed these aspects of uncertainty. The findings identify the significant role uncertainty and familial concerns play in mothers' genetic testing decision making process. To assist genetic practitioners, we highlight daughter-related concerns that mothers are uncertain about and which are vital to their genetic counseling needs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.