ArticleJournal of genetic counseling2011
Providers' perceptions and practices regarding BRCA1/2 genetic counseling and testing in African American women.
Article in Journal of genetic counseling, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03511690 (Testing an Intelligent Tutoring System Intervention to Enhance Genetic Risk Assessment in Underserved Blacks and Latinas at Risk of Hereditary Breast Cancer), which is not on this map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Testing an Intelligent Tutoring System Intervention to Enhance Genetic Risk Assessment in Underserved Blacks and Latinas at Risk of Hereditary Breast Cancer
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Mainstreaming genetics and genomics: a systematic review of the barriers and facilitators for nurses and physicians in secondary and tertiary care.Genetics in medicine : official journal of the American College of Medical Genetics · 2020Pooled it
- Disparities in genetic services utilization in a random sample of young breast cancer survivors.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Trial
- Disparities in uptake of BRCA1/2 genetic testing in a randomized trial of telephone counseling.Genetics in medicine : official journal of the American College of Medical Genetics · 2015Trial
- Evaluation of disparities in perceived healthcare discrimination amongWomen & health · 2023Article
- Big Advocacy, Little Recognition: The Hidden Work of Black Patients in Precision Medicine.Research square · 2023Article
- Financial constraints on genetic counseling and further risk-management decisions among U.S. women at elevated breast cancer risk.Journal of genetic counseling · 2021Article
- The big reveal: Family disclosure patterns of BRCA genetic test results among young Black women with invasive breast cancer.Journal of genetic counseling · 2020Article
- Provider's Perceptions of Barriers and Facilitators for Latinas to Participate in Genetic Cancer Risk Assessment for Hereditary Breast and Ovarian Cancer.Healthcare (Basel, Switzerland) · 2018Article
- Tracking the dissemination of a culturally targeted brochure to promote awareness of hereditary breast and ovarian cancer among Black women.Patient education and counseling · 2017Article
- Health Care Segregation, Physician Recommendation, and Racial Disparities in BRCA1/2 Testing Among Women With Breast Cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2016Article
- What Black Women Know and Want to Know About Counseling and Testing for BRCA1/2.Journal of cancer education : the official journal of the American Association for Cancer Education · 2015Article
- Patterns of 21-gene assay testing and chemotherapy use in black and white breast cancer patients.Clinical breast cancer · 2015Observational
- Understanding patient and provider perceptions and expectations of genomic medicine.Journal of surgical oncology · 2015Review
- Discussing race-related limitations of genomic testing for colon cancer risk: implications for education and counseling.Social science & medicine (1982) · 2014Article
- African American women's limited knowledge and experiences with genetic counseling for hereditary breast cancer.Journal of genetic counseling · 2014Article
- Medical mistrust influences black women's level of engagement in BRCA 1/2 genetic counseling and testing.Journal of the National Medical Association · 2013Article
- Outcomes of a systems-level intervention offering breast cancer risk assessments to low-income underserved women.Familial cancer · 2012Article
- Knowledge, perceptions, attitudes, and barriers pertaining to genetic literacy among surgeons: a scoping review.Canadian journal of surgery. Journal canadien de chirurgieArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
We examined healthcare providers' perceptions of genetic counseling and testing in African American women at moderate to high-risk of carrying a BRCA1/2 mutation. We conducted 20 in-depth interviews with genetic counselors (n = 5), medical oncologists (n = 8), obstetrician/gynecologists (n = 2) and surgeons (n = 5). Interviews were audiotaped, transcribed and independently coded by two individuals using a content analysis approach. Seven themes emerged relevant to providers' perceptions of African American women's use of BRCA1/2 genetic services: access factors, cultural beliefs and preferences, effects of testing, patient motivators for genetic counseling and testing, patient-provider communication, reasons for provider referral, and reasons for patient refusal. Providers identified individual- and system-level barriers to African American women's use of genetic services, including lack of follow-up after referrals to genetic specialists and challenges to obtaining financial coverage for under- and uninsured high-risk women. Results have implications for physician and patient education regarding appropriate referrals to and uptake of genetic services in at-risk African American women.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.