ArticleJournal of pediatric psychology
Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future.
Article in Journal of pediatric psychology. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed.
- Reducing aggression and impulsivity through school-based prevention programs: a gene by intervention interaction.Prevention science : the official journal of the Society for Prevention Research · 2014Trial
- Pediatric Predispositional Genetic Risk Communication: Potential Utility for Prevention and Control of Melanoma Risk as an Exemplar.Journal of genetic counseling · 2017Article
- Psychometric properties of the Pediatric Testing Attitudes Scale-Diabetes (P-TAS-D) for parents of children undergoing predictive risk screening.Pediatric diabetes · 2013Article
- Ethical issues in presymptomatic genetic testing for minors: a dilemma in Li-Fraumeni syndrome.Journal of genetic counseling · 2013Article
- Growing up in the genomic era: implications of whole-genome sequencing for children, families, and pediatric practice.Annual review of genomics and human genetics · 2013Review
- Bridging the Communication Divide: A Role for Health Psychology in the Genomic Era.Professional psychology, research and practice · 2012Article
- Ethical issues in neonatal and pediatric clinical trials.Pediatric clinics of North America · 2012Review
- Engaging children in genomics research: decoding the meaning of assent in research.Genetics in medicine : official journal of the American College of Medical Genetics · 2012Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
Genetic testing offered by direct-to-consumer companies-herein referred to as "predictive genomic testing"--has come under federal scrutiny. Critics claim testing yields uninterpretable and potentially harmful information. Supporters assert individuals have a right to this information, which could catalyze preventive health actions. Despite contentions that predictive genomic testing is a tool of primary disease prevention, little discussion has focused on its use with children. This partly stems from concerns expressed in existing professional guidelines about the potential for psychological and behavioral harm to children engendered by predictive genetic tests for Mendelian diseases. Conducting research to understand the actual benefits and harms is important for policy development and practice guidance and can be ethically justified within the pediatric regulatory framework of research that offers a prospect of direct benefit. Child health psychologists are well poised to contribute to this research effort, and promote the translation of genomic discoveries to improve pediatric medicine.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.