SynthesisThe patient2011
Understanding and assessing the impact of end-stage renal disease on quality of life: a systematic review of the content validity of self-administered instruments used to assess health-related quality of life in end-stage renal disease.
Synthesis in The patient, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Measuring health-related quality of life in Africa: a systematic review of validated disease-specific and generic measurement tools.Frontiers in psychology · 2025Pooled it
- Health related quality of life utility weights for economic evaluation through different stages of chronic kidney disease: a systematic literature review.Health and quality of life outcomes · 2020Pooled it
- The Effect of Stress Management Training on Hope in Hemodialysis Patients.Global journal of health science · 2015Trial
- An umbrella review of patient- and carer-reported measures for assessing adult end-of-life care quality outcomes.EClinicalMedicine · 2025Article
- Development of a preliminary conceptual model of the patient experience of chronic kidney disease: a targeted literature review and analysis.BMC nephrology · 2021Review
- Quality of life for kidney transplant recipients and hemodialysis patients in Palestine: a cross-sectional study.BMC nephrology · 2021Article
- A mixed-methods feasibility study of an arts-based intervention for patients receiving maintenance haemodialysis.BMC nephrology · 2020Article
- Health-related quality of life as predictor of mortality in end-stage renal disease patients: an observational study.BMC nephrology · 2019Observational
- Implementing an arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis: a feasibility study protocol.Pilot and feasibility studies · 2019Article
- Quality of life on hemodialysis and inflammation: a descriptive analysis.Brazilian journal of medical and biological research = Revista brasileira de pesquisas medicas e biologica · 2018Observational
- Effect of Self Care Education with and without Telephone Follow-Up on the Level of Hope in Renal Dialysis Patients: A Single-Blind Randomized Controlled Clinical Trial.International journal of community based nursing and midwifery · 2016Article
- Health-related quality of life of Asian patients with end-stage renal disease (ESRD) in Singapore.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2015Article
- Assessing and improving the health-related quality of life of patients with ESRD.Nature reviews. Nephrology · 2012Review
- Effects of modality change on health-related quality of life.Hemodialysis international. International Symposium on Home Hemodialysis · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Advances in healthcare, combined with an increasing number of adults with end-stage renal disease (ESRD), mean that there is a growing number of people now surviving on renal replacement therapy. The issue of health-related quality of life (HR-QOL) is becoming increasingly important in this area. For this reason, the content validity of various instruments used to measure HR-QOL in an ESRD population were explored. Systematic searches of MEDLINE (1950-2009) were conducted using terms related to ESRD combined with terms associated with measuring HR-QOL. A total of 378 abstracts were identified, detailing the repeated use of six generic measures and four disease-specific measures. The generic HR-QOL measures discussed include the Medical Outcomes 36-Item Short Form Survey (SF-36), the EuroQOL 5 Dimension (EQ-5D), and the WHO QOL assessment (WHOQOL-BREF). The most frequently used disease-specific measure discussed is the Kidney Disease QOL instrument (KDQOL) and its derivative versions (KDQOL-SF, KDQOL-36). The appropriateness of using the SF-36 in this population is challenged and recommendations include using the WHOQOL-BREF in cases when a generic instrument is required and the KDQOL-SF when a more disease-specific measurement is called for.
Indexed as
Identifiers
21766891What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.