SynthesisCroatian medical journal2011
Ethical aspects of human biobanks: a systematic review.
Synthesis in Croatian medical journal, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 44 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
44 citing papers in PubMed, 1 synthesis or guideline pooled it, 132 citations in OpenAlex.
- Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.European journal of human genetics : EJHG · 2015Pooled it
- Charting exposomethics: a roadmap for the ethical foundations of the human exposome project.Human genomics · 2026Review
- Biobanking as a research accelerator: the perspectives of medical students and interns at a saudi university.Frontiers in genetics · 2025Article
- Parental Acceptance of Fetal Tissue Donation.JAMA network open · 2024Article
- Researchers' Perspectives Regarding Ethical Issues of Biobank Research in the Arab Region.Biopreservation and biobanking · 2024Article
- Broad consent for biobank research in South Africa - Towards an enabling ethico-legal framework.Global bioethics = Problemi di bioetica · 2024Article
- The MARS PETCARE BIOBANK protocol: establishing a longitudinal study of health and disease in dogs and cats.BMC veterinary research · 2023Article
- Genetic and Genomic Researchers' Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study.Journal of empirical research on human research ethics : JERHRE · 2023Article
- A Survey on the Role of Artificial Intelligence in Biobanking Studies: A Systematic Review.Diagnostics (Basel, Switzerland) · 2022Review
- Article
- It is not a big deal: a qualitative study of clinical biobank donation experience and motives.BMC medical ethics · 2022Article
- Development and Validation of a Biobank Questionnaire Intended for the Public in the Arab Region.Biopreservation and biobanking · 2021Article
- Current Status and Future Challenges of Biobank Research in Malaysia.Asian bioethics review · 2021Article
- A scoping review of considerations and practices for benefit sharing in biobanking.BMC medical ethics · 2021Article
- Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa.BMC medical ethics · 2021Article
- Participant understanding of informed consent in a multidisease community-based health screening and biobank platform in rural South Africa.International health · 2020Article
- Biobanks-A Platform for Scientific and Biomedical Research.Diagnostics (Basel, Switzerland) · 2020Review
- "As Long as You Ask": A Qualitative Study of Biobanking Consent-Oncology Patients' and Health Care Professionals' Attitudes, Motivations, and Experiences-the B-PPAE Study.The oncologist · 2019Article
- Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum.Journal of multidisciplinary healthcare · 2019Article
- Current practices for access, compensation, and prioritization in biobanks. Results from an interview study.European journal of human genetics : EJHG · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo systematically assess the existing literature on ethical aspects of human biobanks.
methodWe searched the Web of Science and PubMed databases to find studies addressing ethical problems in biobanks with no limits set (study design, study population, time period, or language of publication). All identified articles published until November 2010 were included. We analyzed the type of published articles, journals publishing them, involvement of countries/institutions, year of publication, and citations received, and qualitatively assessed every article in order to identify ethical issues addressed by the majority of published research on human biobanking.
resultsHundred and fifty four studies satisfied our review criteria. The studies mainly came from highly developed countries and were all published in the last two decades, with over half of them published in 2009 or 2010. They most commonly discussed the informed consent, privacy and identifiability, return of results to participants, importance of public trust, involvement of children, commercialization, the role of ethics boards, international data exchange, ownership of samples, and benefit sharing.
conclusionsThe focus on ethical aspects is strongly present through the whole biobanking research field. Although there is a consensus on the old and most typical ethical issues, with further development of the field and increasingly complex structure of human biobanks, these issues will likely continue to arise and accumulate, hence requiring constant re-appraisal and continuing discussion.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.