ArticleJournal of the American Medical Informatics Association : JAMIA
Personal health records: a scoping review.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 203 papers, 12 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
203 citing papers in PubMed, 12 syntheses or guidelines pooled it.
- What are the functionalities and features of mobile health record apps supporting persons experiencing social exclusion? A systematic literature review.Frontiers in digital health · 2025Pooled it
- Exploring applications of blockchain in healthcare: road map and future directions.Frontiers in public health · 2023Pooled it
- Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.BMC medical informatics and decision making · 2020Pooled it
- The usefulness and acceptability of a personal health record to children and young people living with a complex health condition: A realist review of the literature.Child: care, health and development · 2019Pooled it
- The Use of Cancer-Specific Patient-Centered Technologies Among Underserved Populations in the United States: Systematic Review.Journal of medical Internet research · 2019Pooled it
- The Use and Effects of Electronic Health Tools for Patient Self-Monitoring and Reporting of Outcomes Following Medication Use: Systematic Review.Journal of medical Internet research · 2018Pooled it
- Primary care physicians' attitudes to the adoption of electronic medical records: a systematic review and evidence synthesis using the clinical adoption framework.BMC medical informatics and decision making · 2018Pooled it
- Methods to Evaluate the Effects of Internet-Based Digital Health Interventions for Citizens: Systematic Review of Reviews.Journal of medical Internet research · 2018Pooled it
- Personal Health Records: A Systematic Literature Review.Journal of medical Internet research · 2017Pooled it
- Factors that influence the implementation of e-health: a systematic review of systematic reviews (an update).Implementation science : IS · 2016Pooled it
- "Nothing About Me Without Me": An Interpretative Review of Patient Accessible Electronic Health Records.Journal of medical Internet research · 2015Pooled it
- Conditions potentially sensitive to a personal health record (PHR) intervention, a systematic review.BMC medical informatics and decision making · 2015Pooled it
- Impact of Personal Health Records and Wearables on Health Outcomes and Patient Response: Three-Arm Randomized Controlled Trial.JMIR mHealth and uHealth · 2019Trial
- Trial
- Using Health Information Technology to Foster Engagement: Patients' Experiences with an Active Patient Health Record.Health communication · 2017Trial
- Personal health records: a randomized trial of effects on elder medication safety.Journal of the American Medical Informatics Association : JAMIATrial
- Perspectives on Health Data Sharing Among Patients With Somatic and Mental Health Diseases: Focus Group Study.Journal of medical Internet research · 2026Article
- Factors Influencing User Satisfaction in Accessing Health Data: Cross-Sectional Survey of United Kingdom Adults.JMIR human factors · 2026Article
- Quantitative perspectives of patients and healthcare professionals to inform the co-design of an mHealth application for knee osteoarthritis management.BMC medical informatics and decision making · 2026Article
- Using a Technology Acceptance Model to Explore the Intention to Use Digital Health Technologies Among People With Disabilities: Cross-Sectional Survey Study.Journal of medical Internet research · 2025Article
143 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Electronic personal health record systems (PHRs) support patient centered healthcare by making medical records and other relevant information accessible to patients, thus assisting patients in health self-management. We reviewed the literature on PHRs including design, functionality, implementation, applications, outcomes, and benefits. We found that, because primary care physicians play a key role in patient health, PHRs are likely to be linked to physician electronic medical record systems, so PHR adoption is dependent on growth in electronic medical record adoption. Many PHR systems are physician-oriented, and do not include patient-oriented functionalities. These must be provided to support self-management and disease prevention if improvements in health outcomes are to be expected. Differences in patient motivation to use PHRs exist, but an overall low adoption rate is to be expected, except for the disabled, chronically ill, or caregivers for the elderly. Finally, trials of PHR effectiveness and sustainability for patient self-management are needed.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.