ArticleAmerican journal of community psychology2012
Diverse perceptions of the informed consent process: implications for the recruitment and participation of diverse communities in the National Children's Study.
Article in American journal of community psychology, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it, 41 citations in OpenAlex.
- Toward global reproductive justice: a universal framework for evaluating equity and autonomy in in-vitro fertilization policies.Reproductive health · 2025Pooled it
- Disparities in Congenital Cytomegalovirus (cCMV) Postpartum Newborn Screening Research Participation.Journal of racial and ethnic health disparities · 2025Article
- A qualitative study on cultural sensitivity during survey fieldwork for early childhood caries in Ile-Ife, Nigeria: bridging the gap between culture and science.BMC research notes · 2025Article
- Understanding and processing informed consent during data-intensive health research in sub-Saharan Africa: challenges and opportunities from a multilingual perspective.Research ethics · 2025Article
- Article
- A Novel Clinical Research Modality for Enrolling Diverse Participants Using a Diverse Team.Brain sciences · 2020Article
- Factors Influencing Participation in Biospecimen Research among Parents of Youth with Mental Health Conditions.Public health genomics · 2020Article
- Perceived Risks and Benefits in IPV and HIV Research: Listening to the Voices of HIV-Positive African American Women.Journal of empirical research on human research ethics : JERHRE · 2018Article
- Developing a Process for Returning Medically Actionable Genomic Variants to Latino Patients in a Federally Qualified Health Center.Public health genomics · 2018Article
- Ethical considerations for involving Latina adolescents in mental health research.Journal of child and adolescent psychiatric nursing : official publication of the Association of Child and Adolescent Psychiatric Nurses, Inc · 2017Article
- Review
- Participation in pediatric oncology research protocols: Racial/ethnic, language and age-based disparities.Pediatric blood & cancer · 2015Article
- Prenatal recruitment of participants for a birth cohort study including cord blood collection: results of a feasibility study in Bremen, Germany.German medical science : GMS e-journal · 2015Article
- Recruitment of women in the National Children's Study Initial Vanguard Study.American journal of epidemiology · 2014Article
- Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation.BMC medical ethics · 2014Article
- Community member and faith leader perspectives on the process of building trusting relationships between communities and researchers.Clinical and translational science · 2014Article
- Recruitment and retention of children in behavioral health risk factor studies: REACH strategies.International journal of behavioral medicine · 2014Review
- Awareness and Acceptable Practices: IRB and Researcher Reflections on the Havasupai Lawsuit.AJOB primary research · 2013Article
- Recruiting for epigenetic research: facilitating the informed consent process.Nursing research and practice · 2013Article
- Maternal perspectives on the return of genetic results: context matters.American journal of medical genetics. Part A · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
Abstract
We examined the experiences, perceptions, and values that are brought to bear when individuals from different ethnic and cultural backgrounds consider participating in health research. Fifty-three women from Latino, Asian American, Middle Eastern, or Non-Latino, White backgrounds participated in seven English or Spanish focus groups facilitated by trained investigators using a standard protocol. Investigators described the National Children's Study (NCS) and then asked questions to elicit potential concerns, expectations, and informational needs. Group sessions were audio-recorded, transcribed verbatim, and analyzed using qualitative thematic methods. A major theme that emerged during focus groups was participant self-identification as a member of a cultural group or community when raising issues that would influence their decision to participate in research. A related theme was the belief by some that communities may differ in the ease of participation in the NCS. Identified themes related to the informed consent process included perceived risks, anticipated burden, perceived benefits, informational needs, and decision-making strategies. Although themes were shared across groups, there were cultural differences within themes. Findings indicated that individuals from diverse backgrounds may have different perspectives on and expectations for the research process. To effectively recruit representative samples, it will be important to address a range of issues relevant for informed consent and to consider the impact of participation on both individuals and communities.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.