ArticleMaternal and child health journal2012
Unmet need and problems accessing core health care services for children with autism spectrum disorder.
Article in Maternal and child health journal, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05497167 (Development and Evaluation of "Period Kits" for Adolescents With Intellectual and Developmental Disabilities), which is not on this map. Cited by 105 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Development and Evaluation of "Period Kits" for Adolescents With Intellectual and Developmental Disabilities
Who cites it
105 citing papers in PubMed, 3 syntheses or guidelines pooled it, 282 citations in OpenAlex.
- Systematic Review of Disparities and Differences in the Access and Use of Allied Health Services Amongst Children with Autism Spectrum Disorders.Journal of autism and developmental disorders · 2021Pooled it
- Caregiver and Child Behavioral Health Service Utilization Following Pediatric Traumatic Brain Injury.Research on child and adolescent psychopathology · 2021Pooled it
- Systematic Review: United States Workforce for Autism-Related Child Healthcare Services.Journal of the American Academy of Child and Adolescent Psychiatry · 2020Pooled it
- The effectiveness of training community mental health therapists in an evidence-based intervention for ASD: Findings from a hybrid effectiveness-implementation trial in outpatient and school-based mental health services.Autism : the international journal of research and practice · 2022Trial
- Enhancing interactions during daily routines: A randomized controlled trial of a web-based tutorial for parents of young children with ASD.Autism research : official journal of the International Society for Autism Research · 2018Trial
- Where are all the Services: Mapping Community-Based Services for Canadian Autistic Youth with Co-occurring Mental Health Conditions.Journal of autism and developmental disorders · 2026Article
- Characterizing service receipt among families of young autistic children from low-resourced communities.International journal of developmental disabilities · 2026Article
- "I'm His Voice": Parent Perspectives on Obtaining an Autism Diagnosis and Services and the Influence of Personal and Cultural Factors.Journal of autism and developmental disorders · 2026Article
- Fostering inclusion in clinical and research procedures in autistic youth through augmentative and alternative communication: a narrative review and a proposal for visual aids application in brain stimulation.Frontiers in psychiatry · 2026Review
- Cervical Cancer Screening and Prevention Uptake in Females with Autism Spectrum Disorder.Journal of autism and developmental disorders · 2026Article
- Sociodemographic Factors Associated with Autistic Youth's Psychotherapy Service Use.Administration and policy in mental health · 2025Article
- Tele-PCIT: Initial Examination of Internet Delivered PCIT for Young Children with Autism.Child psychiatry and human development · 2025Article
- Predictive Analysis of Parent Activation and Autism.Journal of autism and developmental disorders · 2024Article
- Mental Health in Mothers of Autistic Children with a Medical Home: The Potentially Mechanistic Roles of Coping and Social Support.Journal of autism and developmental disorders · 2024Article
- Optimizing Care for Autistic Patients in Health Care Settings: A Scoping Review and Call to Action.Academic pediatrics · 2024Article
- Community-based Agency Delivery of Parent-Child Interaction Therapy: Comparing Outcomes for Children with and Without Autism Spectrum Disorder and/or Developmental Delays.Journal of autism and developmental disorders · 2024Article
- Demographic differences in access to health/therapeutic services over first year of the pandemic: a SPARK COVID-19 impact survey analysis.Frontiers in health services · 2024Article
- Evaluating Parents' Concerns, Needs, and Levels of Satisfaction with the Services Provided for ASD Children in Saudi Arabia.Journal of multidisciplinary healthcare · 2024Article
- Facilitators and barriers in psychotherapy from the perspective of autistic adults: an enhanced critical incident study.International journal of qualitative studies on health and well-being · 2023Review
- Emergency Department Utilization Among Youth with Autism Spectrum Disorder: Exploring the Role of Preventive Care, Medical Home, and Mental Health Access.Journal of autism and developmental disorders · 2023Article
45 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
To investigate the health care experiences of children with autism spectrum disorder, whether they have unmet needs, and if so, what types, and problems they encounter accessing needed care. We address these issues by identifying four core health care services and access problems related to provider and system characteristics. Using data from the 2005-2006 National Survey of Children with Special Health Care Needs (NS-CSHCN) we compared children with autism spectrum disorder with children with special health care needs with other emotional, developmental or behavioral problems (excluding autism spectrum disorder) and with other children with special health care needs. We used weighted logistic regression to examine differences in parent reports of unmet needs for the three different health condition groups. Overall unmet need for each service type among CSHCN ranged from 2.5% for routine preventive care to 15% for mental health services. After controlling for predisposing, enabling and need factors, some differences across health condition groups remained. Families of children with autism spectrum disorder were in fact significantly more at risk for having unmet specialty and therapy care needs. Additionally, families of children with autism spectrum disorder were more likely to report provider lack of skills to treat the child as a barrier in obtaining therapy and mental health services. Disparities in unmet needs for children with autism suggest that organizational features of managed care programs and provider characteristics pose barriers to accessing care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.