ArticleBMC public health2011
Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak.
Article in BMC public health, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 3 of them syntheses that pooled it.
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Who cites it
25 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Barriers impeding research data sharing on chronic disease prevention among the older adults in low-and middle-income countries: a systematic review.Frontiers in public health · 2024Pooled it
- A systematic review of barriers to data sharing in public health.BMC public health · 2014Pooled it
- Views of healthcare professionals to linkage of routinely collected healthcare data: a systematic literature review.Journal of the American Medical Informatics Association : JAMIA · 2014Pooled it
- Barriers and facilitators of infectious disease outbreak reporting: a One Health scoping review.One health outlook · 2025Article
- A Privacy-Preserving Audit and Feedback System for the Antibiotic Prescribing of General Practitioners: Survey Study.JMIR formative research · 2022Article
- Lessons for the global primary care response to COVID-19: a rapid review of evidence from past epidemics.Family practice · 2021Review
- Review
- Evaluating the utility of synthetic COVID-19 case data.JAMIA open · 2021Article
- Supporting patients with female genital mutilation in primary care: a qualitative study exploring the perspectives of GPs' working in England.The British journal of general practice : the journal of the Royal College of General Practitioners · 2020Article
- Pandemics, privacy, and public health research.Canadian journal of public health = Revue canadienne de sante publique · 2020Article
- Privacy-preserving architecture for providing feedback to clinicians on their clinical performance.BMC medical informatics and decision making · 2020Article
- Willingness to Participate in Health Information Networks with Diverse Data Use: Evaluating Public Perspectives.EGEMS (Washington, DC) · 2019Article
- Characteristics of Laws Requiring Physicians to Report Patient Information for Public Health Surveillance: Notable Patterns from a Nevada Case Study.Journal of community health · 2018Article
- Foodborne Illness Outbreak Investigation in a High-Profile Sports Club.Sports medicine - open · 2017Article
- Notifiable condition reporting practices: implications for public health agency participation in a health information exchange.BMC public health · 2017Article
- Secure and scalable deduplication of horizontally partitioned health data for privacy-preserving distributed statistical computation.BMC medical informatics and decision making · 2017Article
- Article
- Secure surveillance of antimicrobial resistant organism colonization or infection in Ontario long term care homes.PloS one · 2014Article
- A secure distributed logistic regression protocol for the detection of rare adverse drug events.Journal of the American Medical Informatics Association : JAMIA · 2013Article
- Estimating the re-identification risk of clinical data sets.BMC medical informatics and decision making · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPrivacy concerns by providers have been a barrier to disclosing patient information for public health purposes. This is the case even for mandated notifiable disease reporting. In the context of a pandemic it has been argued that the public good should supersede an individual's right to privacy. The precise nature of these provider privacy concerns, and whether they are diluted in the context of a pandemic are not known. Our objective was to understand the privacy barriers which could potentially influence family physicians' reporting of patient-level surveillance data to public health agencies during the Fall 2009 pandemic H1N1 influenza outbreak.
methodsThirty seven family doctors participated in a series of five focus groups between October 29-31 2009. They also completed a survey about the data they were willing to disclose to public health units. Descriptive statistics were used to summarize the amount of patient detail the participants were willing to disclose, factors that would facilitate data disclosure, and the consensus on those factors. The analysis of the qualitative data was based on grounded theory.
resultsThe family doctors were reluctant to disclose patient data to public health units. This was due to concerns about the extent to which public health agencies are dependable to protect health information (trusting beliefs), and the possibility of loss due to disclosing health information (risk beliefs). We identified six specific actions that public health units can take which would affect these beliefs, and potentially increase the willingness to disclose patient information for public health purposes.
conclusionsThe uncertainty surrounding a pandemic of a new strain of influenza has not changed the privacy concerns of physicians about disclosing patient data. It is important to address these concerns to ensure reliable reporting during future outbreaks.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.