ArticleJournal of community health2012
Reported benefits of participation in a research study.
Article in Journal of community health, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review and meta synthesis of barriers and facilitators to Black women's participation in healthcare research.BMC medical research methodology · 2026Pooled it
- Lonelier people feel less empathic despite intact neural empathy responses after meditation training.Social cognitive and affective neuroscience · 2026Trial
- Home-Based Tailored Light Therapy for Sleep, Mood, and Cognitive Outcomes in Mild Cognitive Impairment: A Randomized Trial.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Vulnerability and Pediatric Pain.Paediatric & neonatal pain · 2026Article
- Article
- Barriers and Facilitators to Participation in the Employees' Health Cohort Study of Iran (EHCSIR): A Qualitative Content Analysis.Medical journal of the Islamic Republic of Iran · 2026Article
- Standardising management of consent withdrawal and other clinical trial participation changes: The UKCRC Registered Clinical Trials Unit Network's PeRSEVERE project.Clinical trials (London, England) · 2025Article
- Latine Immigrant Perspectives on Trust of Clinical Research.Hispanic health care international : the official journal of the National Association of Hispanic Nurses · 2025Article
- The benefits for health care staff of involvement in applied health research: a scoping review.Health research policy and systems · 2025Article
- Outcome of cryoneurolysis treatment in knee osteoarthritis: A systematic review.Journal of clinical orthopaedics and trauma · 2025Review
- A qualitative study of recruitment strategies: Perspectives from older adults living with diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2024Article
- Novel Machine Learning HIV Intervention for Sexual and Gender Minority Young People Who Have Sex With Men (uTECH): Protocol for a Randomized Comparison Trial.JMIR research protocols · 2024Article
- Parental engagement in research on paediatric lower respiratory tract infections in Indonesia.BMC pediatrics · 2024Article
- Perspectives of People At-Risk on Parkinson's Prevention Research.Journal of Parkinson's disease · 2024Review
- Association of Perceived Benefit or Burden of Research Participation With Participants' Withdrawal From Cancer Clinical Trials.JAMA network open · 2022Article
- The Health and Care Act 2022: challenges and priorities for embedding research in the NHS.Lancet (London, England) · 2022Article
- How Should Representation of Subjects With LEP Become More Equitable in Clinical Trials?AMA journal of ethics · 2022Article
- Knowledge, Attitudes, and Practices Regarding COVID-19 among Healthcare Workers in Uganda: A Cross-Sectional Survey.International journal of environmental research and public health · 2021Article
- Informing National Health Service patients about participation in clinical research: A comparison of opt-in and opt-out approaches across the United Kingdom.The Australian and New Zealand journal of psychiatry · 2021Article
- Participant-Centered Strategies for Overcoming Barriers to Biospecimen Collection among Spanish-Speaking Latina Breast Cancer Survivors.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Racial and ethnic minorities are significantly underrepresented in clinical research trials. Several socio-cultural and systemic barriers, ranging from discrimination by the health care system, medical mistrust, to low physician referral rates and lack of knowledge of research studies have been identified as impacting participation. One hundred and fifteen participants were culturally matched and were interviewed followed by up to an additional four interviews over a 12 month period. Responses were analyzed to understand the perceived benefits to participating in a prospective, randomized, longitudinal clinical research trial about screening colonoscopy. Over two-thirds (64.4%) of participants reported "knowledge, awareness, and/or information about colonoscopy and general health" as being the greatest benefit they received. Desire to undergo the screening and the pride of completing the study was ranked second and third, respectively. Understanding the reasons that participants choose to participate in research studies will ultimately assist researchers close the gap in minority representation, allowing for greater generalizability of research findings.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.