ArticleJournal of genetic counseling2011
Media coverage of direct-to-consumer genetic testing.
Article in Journal of genetic counseling, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Internet-Based Direct-to-Consumer Genetic Testing: A Systematic Review.Journal of medical Internet research · 2015Pooled it
- Behavioral Genetics as a Public Science: Introduction to the Special Issue.Behavior genetics · 2026Article
- "La Piedra Rosetta" Content Analysis of Health-Specific Stories on Genetic Testing From Spanish-Language News Outlets.The Howard journal of communications · 2023Article
- Toward an open access genomics database of South Africans: ethical considerations.Frontiers in genetics · 2023Article
- Factors Associated with the Uptake of Genetic Testing for Cancer Risks: A Pathway Analysis Using the Health Information National Trends Survey Data.Life (Basel, Switzerland) · 2022Article
- Considerations for developing regulations for direct-to-consumer genetic testing: a scoping review using the 3-I framework.Journal of community genetics · 2022Article
- Direct-to-Consumer Genetic Testing in South Africa: Stumbling Over the First Legal Hurdle?Potchefstroom electronic law journal · 2022Article
- Demographic and socioeconomic trends in DNA banking utilization in the USA.Journal of community genetics · 2021Article
- Direct-to-consumer genetic testing: Prospective users' attitudes toward information about ancestry and biological relationships.PloS one · 2021Article
- Public reactions to direct-to-consumer genetic health tests: A comparison across the US, UK, Japan and Australia.European journal of human genetics : EJHG · 2020Article
- Direct to consumer genetic testing-law and policy concerns in Ireland.Irish journal of medical science · 2018Article
- Parental Perception of Self-Empowerment in Pediatric Pharmacogenetic Testing: The Reactions of Parents to the Communication of Actual and Hypothetical CYP2D6 Test Results.Health communication · 2017Article
- Characteristics of genetics-related news content in Black weekly newspapers.Public health genomics · 2014Article
- Direct-to-Consumer Genetic Testing and Personal Genomics Services: A Review of Recent Empirical Studies.Current genetic medicine reports · 2013Article
- A randomized trial of genetic information for personalized nutrition.Genes & nutrition · 2012Article
- Direct-to-consumer personalized genomic testing.Human molecular genetics · 2011Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Media coverage of Direct-to-Consumer (DTC) genetic testing shapes public perception of such testing. The purpose of this study was to determine and assess the themes presented by U.S. news media regarding DTC genetic testing. We performed a Lexis-Nexis search with the keywords "Direct-to-Consumer" and "genetic test" for news stories published from 2006-2009. The sample was coded on themes of genetic determinism, privacy, discrimination, validity, regulation, the Genetic Information Nondiscrimination Act (GINA), utility, and cost. Ninety-two news stories were included. Stories displayed moderate genetic determinism and were neutral about validity and utility. Stories indicated that insurance and employers were the most likely sources of discrimination, yet identified the physicians and DTC companies as groups most likely to violate privacy. Stories claimed lack of regulation would harm consumers, but most post-GINA stories did not discuss the law. The costs of tests were frequently included. The results of this study show a broad range of views toward DTC genetic testing and its potential impacts. The genetics community should be aware that the public has been exposed to multiple views of DTC genetic testing when discussing these tests.
Indexed as
Identifiers
21638197What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.