ArticleJournal of community genetics2010
Enhancing recruitment of African-American families into genetic research: lessons learned from Project SuGar.
Article in Journal of community genetics, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 21 citations in OpenAlex.
- Recruitment of Yoruba families from Nigeria for genetic research: experience from a multisite keloid study.BMC medical ethics · 2014Pooled it
- Meaningful engagement of lived experience in diabetes research and health service improvement: A rapid review of barriers to and enablers for community involvement among adults with type 2 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026Review
- "Lord Knows What's Being Done with My Blood!": Black Women's Perceptions of Biospecimen Donation for Clinical Research in the United States.Journal of racial and ethnic health disparities · 2025Article
- Introducing Healthy Together: A Monograph of African American Men, Chronic Disease, and Self-Management.Social work in public health · 2024Article
- Engaging community stakeholders in research on best practices for clinical genomic sequencing.Personalized medicine · 2020Article
- African-American and Caucasian participation in postmortem human brain donation for neuropsychiatric research.PloS one · 2019Article
- Sistas Taking a Stand for Breast Cancer Research (STAR) Study: A Community-Based Participatory Genetic Research Study to Enhance Participation and Breast Cancer Equity among African American Women in Memphis, TN.International journal of environmental research and public health · 2018Article
- Challenges in recruiting African-American women for a breast cancer genetics study.Hereditary cancer in clinical practice · 2018Article
- Sociocultural variation in attitudes toward use of genetic information and participation in genetic research by race in the United States: implications for precision medicine.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- Strategies for enrollment of African Americans into cancer genetic studies.Journal of cancer education : the official journal of the American Association for Cancer Education · 2015Article
- Cardiovascular risk in Gullah African Americans with high familial risk of type 2 diabetes mellitus: project SuGAR.Southern medical journal · 2014Article
- Recruitment of black subjects for a natural history study of intracerebral hemorrhage.Journal of health care for the poor and underserved · 2013Article
- Socioeconomic determinants associated with willingness to participate in medical research among a diverse population.Contemporary clinical trials · 2012Article
- Who is being referred to cancer genetic counseling? Characteristics of counselees and their referral.Journal of community genetics · 2012Article
- Are enrollment sites the key to optimizing participation in genetic studies?Genome medicine · 2011Article
- Understanding participation by African Americans in cancer genetics research.Journal of the National Medical AssociationArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author at 1 institution in 1 country.
Funding
Abstract
Despite some recruitment success in biomedical research among minorities, participation by African-American families into research, specifically genetic research, is lower than Caucasian families (Bowen and Penchaszadeh Community Genet 11:189-190, 2008). Such low participation rates by African-Americans prevent the exploration of specific ethnic differences in patterns of diseases and diminish the identification of specific disease risks among ethnic groups (Bowen and Penchaszadeh Community Genet 11:189-190, 2008). Although African-Americans are heterogeneous, few studies exist to describe effective recruitment strategies across diverse African-American populations, and even fewer studies share effective strategies for the enrollment of African-American families into genetic research. A process evaluation of recruitment strategies used by Project SuGar (a community-based genetic research study focusing on families affected by type 2 diabetes) to enroll African-American families into genetic research was conducted. Our goal was to enroll 400 affected African-American families, and our results yielded 672 families, (n=672). Our success can be attributed to the formation of a Citizen Advisory Committee, recruitment style, flexible protocol, and formal agreement with community health centers. We found that African-American families will participate in research and that providing tangible benefits to the community and utilizing a sense of patience can enhance positive recruitment results. Data from this study may be used to recruit geographically isolated families into genetic research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.