ArticleJournal of genetic counseling2011
Unpacking the blockers: understanding perceptions and social constraints of health communication in hereditary breast ovarian cancer (HBOC) susceptibility families.
Article in Journal of genetic counseling, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 36 citations in OpenAlex.
- A systematic review of theory-informed strategies used in interventions fostering family genetic risk communication.Patient education and counseling · 2022Pooled it
- Educating the Public on the Health Risks of Very Low Nicotine Content Cigarettes: Results From a US-Based Convenience Sample.Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco · 2022Trial
- Psychosocial barriers and facilitators for cascade genetic testing in hereditary breast and ovarian cancer: a scoping review.Familial cancer · 2024Article
- Developing and assessing a kin keeping scale with application to identifying central influencers in African American family networks.Journal of community genetics · 2023Article
- Family Identity and Roles in the Context of Li-Fraumeni Syndrome: "No One's Like Us Mutants".Health & social work · 2021Article
- Sharing genetic test results with family members of BRCA, PALB2, CHEK2, and ATM carriers.Patient education and counseling · 2021Article
- How the "control-fate continuum" helps explain the genetic testing decision-making process: a grounded theory study.European journal of human genetics : EJHG · 2020Article
- Challenges and strategies proposed by genetic health professionals to assist with family communication.European journal of human genetics : EJHG · 2019Article
- Female family members lack understanding of indeterminate negative BRCA1/2 test results shared by probands.Journal of genetic counseling · 2019Article
- Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.Journal of family nursing · 2019Article
- A Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer.Journal of genetic counseling · 2017Article
- Easing the Burden: Describing the Role of Social, Emotional and Spiritual Support in Research Families with Li-Fraumeni Syndrome.Journal of genetic counseling · 2016Article
- Patients' Attitudes Towards Disclosure of Genetic Test Results to Family Members: The Impact of Patients' Sociodemographic Background and Counseling Experience.Journal of genetic counseling · 2016Article
- Facilitators and Challenges in Psychosocial Adaptation to Being at Increased Familial Risk of Breast Cancer.Journal of genetic counseling · 2015Article
- How can psychological science inform research about genetic counseling for clinical genomic sequencing?Journal of genetic counseling · 2015Article
- Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease.European journal of human genetics : EJHG · 2015Article
- Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015Article
- Exploring resources for intrafamilial communication of cancer genetic risk: we still need to talk.European journal of human genetics : EJHG · 2013Article
- Family communication following BRCA1/2 genetic testing: a close look at the process.Journal of genetic counseling · 2013Article
- Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider.Journal of community genetics · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 5 institutions in 1 country.
Funding
Abstract
Family communication is essential for accurate cancer risk assessment and counseling; family blockers play a role in this communication process. This qualitative analysis of social exchanges is an extension of earlier work characterizing those who are perceived by study participants as health information gatherers, disseminators, and blockers within families with Hereditary Breast and Ovarian Cancer (HBOC) susceptibility. Eighty-nine women, ages 23-56 years, enrolled in a Breast Imaging Study (BIS) and participated in a sub-study utilizing a social assessment tool known as the Colored Ecological Genetic Relational Map (CEGRM). Purposive sampling ensured that participants varied according to numbers of participating family members e.g., ranging from 1 to 6. Eighty-nine women from 42 families (1-8 relatives/family) participated. They collectively designated 65 blockers, both male and female. Situational factors, beliefs, attitudes and cultural traditions, privacy and protectiveness comprised perceived reasons for blocking intra-family health communications. Longitudinal data collected over 4 years showed families where blocking behavior was universally recognized and stable over time, as well as other families where blocking was less consistent. Self-blocking was observed among a significant minority of participating women. Blocking of health communications among family members with HBOC was variable, complex, and multifaceted. The reasons for blocking were heterogeneous; duration of the blocking appeared to depend on the reasons for blocking. Blocking often seemed to involve bi-directional feedback loops, in keeping with Lepore's Social Constraints and Modulation Theory. Privacy and protectiveness predominated as explanations for long-term blocking.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.