ArticleJournal of the American Geriatrics Society2011
Decision-making and outcomes of feeding tube insertion: a five-state study.
Article in Journal of the American Geriatrics Society, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04912245 (A Telehealth Advance Care Planning Intervention in Those With Mild Cognitive Impairment or Unrecognized Dementia), which is not on this map. Cited by 62 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Telehealth Advance Care Planning Intervention in Those With Mild Cognitive Impairment or Unrecognized Dementia (Tele Voice)
Who cites it
62 citing papers in PubMed, 1 synthesis or guideline pooled it, 145 citations in OpenAlex.
- Mapping and understanding the decision-making process for providing nutrition and hydration to people living with dementia: a systematic review.BMC geriatrics · 2020Pooled it
- Advance Care Planning Video Intervention Among Long-Stay Nursing Home Residents: A Pragmatic Cluster Randomized Clinical Trial.JAMA internal medicine · 2020Trial
- Trial
- An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial.JAMA internal medicine · 2018Trial
- PRagmatic trial Of Video Education in Nursing homes: The design and rationale for a pragmatic cluster randomized trial in the nursing home setting.Clinical trials (London, England) · 2017Trial
- Improving decision-making for feeding options in advanced dementia: a randomized, controlled trial.Journal of the American Geriatrics Society · 2011Trial
- Family Caregiver Perspectives on Advance Care Planning Discussions for Residents With Dementia Led by Trained Nursing Home Staff: Insights From the APPROACHES Project.Journal of the American Medical Directors Association · 2026Article
- Feeding-related hospitalizations and outcomes in advanced dementia.European geriatric medicine · 2026Observational
- Factors Influencing Decision Making for Gastrostomy Tube Placement for People Living with Serious Illness: A Scoping Review.Journal of palliative medicine · 2025Article
- A prospective observational study of decision-making by patients with amyotrophic lateral sclerosis upon recommendation for PEG enteral feeding tubes.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2025Observational
- Use of Feeding Tubes Among Hospitalized Older Adults With Dementia.JAMA network open · 2025Article
- End-of-Life Decision Making in Patients with Advanced Dementia: The Perspectives of the Korean General Population and Clinicians.Psychiatry investigation · 2024Article
- Association between physician age and patterns of end-of-life care among older Americans.Journal of the American Geriatrics Society · 2024Article
- Article
- Timing and Outcomes of Percutaneous Endoscopic Gastrostomy After Ischemic Stroke.Gastroenterology research · 2023Article
- Black and white proxy experiences and perceptions that influence advanced dementia care in nursing homes: The ADVANCE study.Journal of the American Geriatrics Society · 2023Article
- Decision Making for Patients With Severe Dementia Versus Normal Cognition Near the End of Life.Innovation in aging · 2023Article
- The design and conduct of a pragmatic cluster randomized trial of an advance care planning program for nursing home residents with dementia.Clinical trials (London, England) · 2022Article
- Decision Aid Interventions for Family Caregivers of Persons With Advanced Dementia in Decision-Making About Feeding Options: A Scoping Review.Journal of the American Medical Directors Association · 2022Article
- Management in severe dementia: recommendations of the Scientific Department of Cognitive Neurology and Aging of the Brazilian Academy of Neurology.Dementia & neuropsychologia · 2022Article
2 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 2 institutions in 1 country.
Funding
Abstract
objectivesTo examine family member's perceptions of decision-making and outcomes of feeding tubes.
designMortality follow-back survey. Sample weights were used to account for oversampling and survey design. A multivariate model examined the association between feeding tube use and overall quality of care rating regarding the last week of life.
settingNursing homes, hospitals, and assisted living facilities.
participantsRespondents whose relative had died from dementia in five states with varying feeding tube use. MEASUREMENTS: Respondents were asked about discussions, decision-making, and outcomes related to their loved ones' feeding problems.
resultsOf 486 family members surveyed, representing 9,652 relatives dying from dementia, 10.8% reported that the decedent had a feeding tube, 17.6% made a decision not to use a feeding tube, and 71.6% reported that there was no decision about feeding tubes. Of respondents for decedents with a feeding tube, 13.7% stated that there was no discussion about feeding tube insertion, and 41.6% reported a discussion that was shorter than 15 minutes. The risks associated with feeding tube insertion were not discussed in one-third of the cases, 51.8% felt that the healthcare provider was strongly in favor of feeding tube insertion, and 12.6% felt pressured by the physician to insert a feeding tube. The decedent was often physically (25.9%) or pharmacologically restrained (29.2%). Respondents whose loved ones died with a feeding tube were less likely to report excellent end-of-life care (adjusted odds ratio=0.42, 95% confidence interval=0.18-0.97) than those who were not.
conclusionBased on the perceptions of bereaved family members, important opportunities exist to improve decision-making in feeding tube insertion.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.