ArticleBMC public health2011
Public perceptions and attitudes toward thalassaemia: Influencing factors in a multi-racial population.
Article in BMC public health, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.
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34 citing papers in PubMed, 1 synthesis or guideline pooled it, 85 citations in OpenAlex.
- Ethical, social, and cultural issues related to clinical genetic testing and counseling in low- and middle-income countries: a systematic review.Genetics in medicine : official journal of the American College of Medical Genetics · 2021Pooled it
- Knowledge, attitudes, and perceptions towards premarital screening among undergraduate university students in Chattogram district, Bangladesh: a cross-sectional study.BMC public health · 2026Article
- Voluntary thalassemia screening: behaviours and constructs among youths from a thalassemia hot spot in Sri Lanka.BMC research notes · 2026Article
- Public awareness, knowledge and attitudes toward thalassemia and its screening in five high-prevalence countries: a cross-sectional study based on an online survey.BMC public health · 2026Article
- Nutritional deficiencies among adults with beta thalassemia major in Vietnam.Public health nutrition · 2025Article
- Experiences and insights of thalassaemia carriers from an indigenous community in Sabah, Malaysia.Journal of community genetics · 2025Article
- Knowledge, attitude, and practices of beta thalassemia: a cross-sectional study among young adults in Delhi-NCR, India.BMC public health · 2025Article
- Anemia among Medical Students from Jakarta: Indonesia-Iron Deficiency or Carrier Thalassemia?Anemia · 2024Article
- Adolescents' experiences and views of the national school-based thalassaemia screening programme in Malaysia: a qualitative study.Journal of community genetics · 2023Article
- Psychiatric disorders and caregiver burden in children with transfusion dependent β-thalassaemia and their caregivers.World journal of clinical pediatrics · 2023Article
- Exploring the Gap Between Knowledge and Behavior Regarding Thalassemia Among University Students: A Cross-Sectional Study in the United Arab Emirates.Journal of community health · 2022Article
- Thalassemia screening: Low level of knowledge among unmarried youths in Kota Bharu, Kelantan, Malaysia.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2022Article
- Activation of STAT and SMAD Signaling Induces Hepcidin Re-Expression as a Therapeutic Target for β-Thalassemia Patients.Biomedicines · 2022Review
- The scenario of knowledge, attitude and practice of the Bangladeshi population towards thalassemia prevention: A nationwide study.PLOS global public health · 2022Article
- Cross-sectional study on knowledge, attitude and practice towards thalassaemia among Indonesian youth.BMJ open · 2021Observational
- Identification of optimal thalassemia screening strategies for migrant populations in Thailand using a qualitative approach.BMC public health · 2021Article
- Feasibility of and barriers to thalassemia screening in migrant populations: a cross-sectional study of Myanmar and Cambodian migrants in Thailand.BMC public health · 2021Article
- Lack of knowledge and misperceptions about thalassaemia among college students in Bangladesh: a cross-sectional baseline study.Orphanet journal of rare diseases · 2020Article
- Parental Knowledge on Thalassaemia and Factors Associated with Refusal to Screen Their Children.The Malaysian journal of medical sciences : MJMS · 2020Article
- Knowledge, Awareness, and Perception of Genetic Testing for Hereditary Disorders Among Malaysians in Klang Valley.Frontiers in genetics · 2020Article
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThalassaemia is a common public health problem in Malaysia and about 4.5 to 6% of the Malays and Chinese are carriers of this genetic disorder. The major forms of thalassaemia result in death in utero of affected foetuses (α-thalassaemia) or life-long blood transfusions for survival in β-thalassaemia. This study, the first nationwide population based survey of thalassaemia in Malaysia, aimed to determine differences in public awareness, perceptions and attitudes toward thalassaemia in the multi-racial population in Malaysia.
methodsA cross-sectional computer-assisted telephone interview survey of a representative sample of multi-racial Malaysians aged 18 years and above was conducted between July and December 2009.
resultsOf a total of 3723 responding households, 2846 (76.4%) have heard of thalassaemia. Mean knowledge score was 11.85 (SD ± 4.03), out of a maximum of 21, with higher scores indicating better knowledge. Statistically significant differences (P < 0.05) in total knowledge score by age groups, education attainment, employment status, and average household income were observed. Although the majority expressed very positive attitudes toward screening for thalassaemia, only 13.6% of married participants interviewed have been screened for thalassaemia. The majority (63.4%) were unsupportive of selective termination of foetuses diagnosed with thalassaemia major.
conclusionStudy shows that carrier and premarital screening programs for thalassaemia may be more effective and culturally acceptable in the reduction of pregnancies with thalassaemia major. The findings provide insights into culturally congruent educational interventions to reach out diverse socio-demographic and ethnic communities to increase knowledge and cultivate positive attitudes toward prevention of thalassaemia.
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