ArticleJournal of neurology2011
Coping style and health-related quality of life in caregivers of epilepsy patients.
Article in Journal of neurology, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Spillover Effects on Caregivers' and Family Members' Utility: A Systematic Review of the Literature.PharmacoEconomics · 2019Pooled it
- The Impact of Coping and Psychological Flexibility on Young Adult Caregivers' Mental Health and Quality of Life.The journal of behavioral health services & research · 2026Article
- The Role of Stigma, Perceived Social Support, and Task-Oriented Coping Style in Relation with Life Satisfaction in Primary Caregivers of Children with Epilepsy: A Multiple Mediation Analysis.Iranian journal of psychiatry · 2025Article
- Quality of Life and Associated Factors Among Primary Caregivers of People Living with Mental Illness in Ethiopia: A Cross-Sectional Study.Health services insights · 2025Article
- Disease Burden and Coping Strategies of Spouses of Patients with Psoriasis: A Qualitative Study.Journal of multidisciplinary healthcare · 2024Article
- Article
- Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation.Journal of patient-reported outcomes · 2021Article
- Quality of life among caregivers of children with epilepsy: A cross-sectional study at Eastern Nepal.Epilepsia open · 2021Article
- Would people living with epilepsy benefit from palliative care?Epilepsy & behavior : E&B · 2021Review
- Mobile Software as a Medical Device (SaMD) for the Treatment of Epilepsy: Development of Digital Therapeutics Comprising Behavioral and Music-Based Interventions for Neurological Disorders.Frontiers in human neuroscience · 2018Article
- Coping strategies and quality of life in caregivers of dependent elderly relatives.Health and quality of life outcomes · 2017Article
- 'Whom will I give him to? The difficulty is mine' : Psychosocial difficulties experienced by care givers of patients with epilepsy in Cape Town, South Africa.Journal of health psychology · 2016Article
- A dyadic model of living with epilepsy based on the perspectives of adults with epilepsy and their support persons.Epilepsy & behavior : E&B · 2015Article
- [Cohesion and family adaptability in women with epilepsy: cross-sectional study].Atencion primaria · 2014Article
- Lennox-Gastaut syndrome: impact on the caregivers and families of patients.Journal of multidisciplinary healthcare · 2014Article
- Caregiver burden in epilepsy: determinants and impact.Epilepsy research and treatment · 2014Article
- Health-related quality of life in family members of patients with an advanced cancer diagnosis: a one-year prospective study.Health and quality of life outcomes · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Epilepsy has a significant impact on health-related quality of life (HRQOL) of patients and personal coping style is an important determinant. Less is known about home caregivers. This study investigates HRQOL and coping style of both patients and caregivers and their interaction. Epilepsy patients attending the outpatient clinic of the University Medical Centre in Utrecht and their caregivers were sent EQ5D and RAND-36 questionnaires. The Utrecht Coping List was used to chart personal coping styles. HRQOL scores of patients and caregivers were compared to the general Dutch population. The association between patient and caregiver HRQOL scores was calculated. A stepwise backward multivariate linear regression analysis was used to explain variances in caregiver HRQOL. Eighty-six couples (49%) returned all questionnaires. Caregiver HRQOL scores were comparable to the general Dutch population (EQ5D: 0.88-0.88; p = 0.90, RAND-36 MCS: -2 points; p = 0.16), while patients HRQOL scores were lower (EQ5D: 0.79; p < 0.01, RAND-36 MCS -10 points; p < 0.01). However, on several specific domains, associations between patient and caregiver HRQOL scores within couples were found. Passive coping style explained 50% of variation in HRQOL scores of caregivers. As a group, caregivers of epilepsy patients have normal HRQOL, but there are significant associations between patient and caregiver HRQOL scores. Improving caregiver HRQOL through interventions on coping style might benefit patients as well. Recognizing personal coping styles of both patient and caregiver should be part of a patient-oriented approach in treatment.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.