ArticleJournal of genetic counseling2011
Development and evaluation of a decision aid for BRCA carriers with breast cancer.
Article in Journal of genetic counseling, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Decision aids for cancer survivors' engagement with survivorship care services after primary treatment: a systematic review.Journal of cancer survivorship : research and practice · 2024Pooled it
- Trial
- Communicating Uncertainty in Written Consumer Health Information to the Public: Parallel-Group, Web-Based Randomized Controlled Trial.Journal of medical Internet research · 2020Trial
- Barriers and interventions to improve the uptake of cancer risk management strategies in hereditary cancer syndromes: a narrative review.International journal of gynecological cancer : official journal of the International Gynecological Cancer Society · 2026Review
- Decision-making in feminizing genital gender-affirming surgery - the effect of the introduction of the GenderAid decision-aid.International journal of transgender health · 2025Article
- Paradigmatic Approach to Support Personalized Counseling With Digital Health (iKNOW).JMIR formative research · 2023Article
- Patient decision support resources inform decisions about cancer susceptibility genetic testing and risk management: a systematic review of patient impact and experience.Frontiers in health services · 2023Review
- Article
- Article
- Development of decision aids for female BRCA1 and BRCA2 mutation carriers in Germany to support preference-sensitive decision-making.BMC medical informatics and decision making · 2021Article
- Decision Aids for Preventive Treatment Alternatives forGeburtshilfe und Frauenheilkunde · 2021Article
- Development and Testing of a Decision Aid for Unaffected Women with a BRCA1 or BRCA2 Mutation.Journal of cancer education : the official journal of the American Association for Cancer Education · 2020Article
- Interventions to improve psychosocial well-being in female BRCA-mutation carriers following risk-reducing surgery.The Cochrane database of systematic reviews · 2019Review
- Development of Breast Cancer Choices: a decision support tool for young women with breast cancer deciding whether to have genetic testing for BRCA1/2 mutations.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Decision aid prototype development for parents considering adenotonsillectomy for their children with sleep disordered breathing.Journal of otolaryngology - head & neck surgery = Le Journal d'oto-rhino-laryngologie et de chirurgie cervico-faciale · 2016Article
- Seeking balance: decision support needs of women without cancer and a deleterious BRCA1 or BRCA2 mutation.Journal of genetic counseling · 2014Article
- The evolution of personalized cancer genetic counseling in the era of personalized medicine.Familial cancer · 2012Article
- Article
- Genetics, genomics, and cancer risk assessment: State of the Art and Future Directions in the Era of Personalized Medicine.CA: a cancer journal for cliniciansReview
Corrections and comments
- Erratum issued
Authors and funding
10 authors.
Funding
Abstract
BRCA+ breast cancer patients face high risk for a second breast cancer and ovarian cancer. Helping these women decide among risk-reducing options requires effectively conveying complex, emotionally-laden, information. To support their decision-making needs, we developed a web-based decision aid (DA) as an adjunct to genetic counseling. Phase 1 used focus groups to determine decision-making needs. These findings and the Ottawa Decision Support Framework guided the DA development. Phase 2 involved nine focus groups of four stakeholder types (BRCA+ breast cancer patients, breast cancer advocates, and genetics and oncology professionals) to evaluate the DA's decision-making utility, information content, visual display, and implementation. Overall, feedback was very favorable about the DA, especially a values and preferences ranking-exercise and an output page displaying personalized responses. Stakeholders were divided as to whether the DA should be offered at-home versus only in a clinical setting. This well-received DA will be further tested to determine accessibility and effectiveness.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.