ReviewPediatrics2011
Children with medical complexity: an emerging population for clinical and research initiatives.
Review in Pediatrics, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07102433 (CHESS - Complexity and Outcomes in Health, Education, and Social Support Among Children and Young People With Life-limiting Conditions), which is not on this map. Cited by 507 papers, 7 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
CHESS - Complexity and Outcomes in Health, Education, and Social Support Among Children and Young People With Life-limiting Conditions: Establishing a Multisectoral Collaboration and Conceptual Framework to Advance Evidence and Practice.
Who cites it
507 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Family Caregivers' Experiences of Services for Children With Medical Complexity: A Systematic Review and Qualitative Evidence Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- A Dutch clinical practice guideline for paediatric palliative care: a systematic review and recommendations on psychosocial care including preloss and bereavement care.BMC palliative care · 2025Guideline
- Trends and challenges in research on integrative health practices and pediatric palliative care: a bibliometric approach.Frontiers in pediatrics · 2025Pooled it
- Comprehensive care programmes for children with medical complexity.The Cochrane database of systematic reviews · 2024Pooled it
- Delineating family needs in the transition from hospital to home for children with medical complexity: part 2, a phenomenological study.Orphanet journal of rare diseases · 2023Pooled it
- How are children with medical complexity being identified in epidemiological studies? A systematic review.World journal of pediatrics : WJP · 2023Pooled it
- Hospital-to-home transitions for children with medical complexity: part 1, a systematic review of reported outcomes.European journal of pediatrics · 2023Pooled it
- Novel Web-Based Technology to Promote Goal-Setting in Complex Chronic Illness: Randomized Controlled Trial.JMIR human factors · 2026Trial
- Self-care in children and young people with complex chronic conditions instrument: development and content validation.International journal of nursing studies advances · 2026Article
- Experiences of family caregivers of children and youth with special health care needs in a medical home-connected virtual preparedness intervention.Families, systems & health : the journal of collaborative family healthcare · 2026Article
- School Nursing Practice and Factors Associated With Job Satisfaction Among School Nurses Supporting Children With Medical Complexity in Japanese Elementary Schools.Japan journal of nursing science : JJNS · 2026Article
- Caregiver Perspectives on Implementation of Discharge Plans for Children With Medical Complexity.Hospital pediatrics · 2026Article
- A Qualitative Study of Parent and Health Care Provider Perspectives on Polypharmacy in Children With Medical Complexity.The journal of pediatric pharmacology and therapeutics : JPPT : the official journal of PPAG · 2026Article
- Increasing complexity in children with life-limiting conditions in England: an analysis of national routine data.Archives of disease in childhood · 2026Article
- The Impact of Hospitals on Language Learning: A Case Study of a 3-Year-Old Boy With Developmental Delay Who Needed Augmentative and Alternative Communication.American journal of speech-language pathology · 2026Article
- The Role of Sleep Studies to Predict Post-Operative Outcomes in Children with Medical Complexity.Children (Basel, Switzerland) · 2026Article
- CMC-ID: identifying children and youth with medical complexity using an electronic health record.BMJ health & care informatics · 2026Article
- Exploration of the relationships between health literacy and experience of care integration in parents of children with special healthcare needs: a cross-sectional study.BMC health services research · 2026Article
- Hospital-to-home transitions for children with medical complexity.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2026Article
- Navigating Uncertainty in Pediatric Chronic Illness Care: A Hermeneutic Phenomenological Study of Nurses in Saudi Arabia.Healthcare (Basel, Switzerland) · 2026Article
447 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
Children with medical complexity (CMC) have medical fragility and intensive care needs that are not easily met by existing health care models. CMC may have a congenital or acquired multisystem disease, a severe neurologic condition with marked functional impairment, and/or technology dependence for activities of daily living. Although these children are at risk of poor health and family outcomes, there are few well-characterized clinical initiatives and research efforts devoted to improving their care. In this article, we present a definitional framework of CMC that consists of substantial family-identified service needs, characteristic chronic and severe conditions, functional limitations, and high health care use. We explore the diversity of existing care models and apply the principles of the chronic care model to address the clinical needs of CMC. Finally, we suggest a research agenda that uses a uniform definition to accurately describe the population and to evaluate outcomes from the perspectives of the child, the family, and the broader health care system.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.