ArticlePediatric allergy and immunology : official publication of the European Society of Pediatric Allergy and Immunology2011
Developing a food allergy curriculum for parents.
Article in Pediatric allergy and immunology : official publication of the European Society of Pediatric Allergy and Immunology, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
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Who cites it
18 citing papers in PubMed, 50 citations in OpenAlex.
- Children at risk of anaphylaxis: A mixed-studies systematic review of parents' experiences and information needs.PEC innovation · 2022Review
- The Development of Age-Based Food Allergy Educational Handouts for Caregivers and Patients: A Work Group Report of the AAAAI Adverse Reactions to Foods Committee.The journal of allergy and clinical immunology. In practice · 2022Article
- Factors associated with parental burden among parents of children with food allergies in China: a cross-sectional study.BMJ open · 2022Article
- Low dietary adherence after a positive food challenge in food allergic adults.Clinical and translational allergy · 2022Article
- Assessment of the Correlation Between Mother and Child Body Mass Index and Mother and Child Diet in Children With Food Allergies.Journal of clinical medicine research · 2019Article
- The Consortium for Food Allergy Research (CoFAR): The first generation.The Journal of allergy and clinical immunology · 2019Article
- Patient-Centered Outcomes in Food Allergy.Current allergy and asthma reports · 2017Review
- Soybean and Lactose in Meat Products and Preparations Sampled at Retail.Italian journal of food safety · 2016Article
- Quality of Life, Stress, and Mental Health in Parents of Children with Parentally Diagnosed Food Allergy Compared to Medically Diagnosed and Healthy Controls.Journal of allergy · 2016Article
- Usage and users of online self-management programs for adult patients with atopic dermatitis and food allergy: an explorative study.JMIR research protocols · 2015Article
- Food allergies in school: design and evaluation of a teacher-oriented training action.Italian journal of pediatrics · 2014Article
- Recent advances on diagnosis and management of childhood asthma and food allergies.Italian journal of pediatrics · 2013Review
- Experiencing a first food allergic reaction: a survey of parent and caregiver perspectives.Allergy, asthma, and clinical immunology : official journal of the Canadian Society of Allergy and Clinical Immunology · 2013Article
- Food allergy prevalence: new possibilities for therapy and prevention.Wiener medizinische Wochenschrift (1946) · 2012Review
- Food allergy.Korean journal of pediatrics · 2012Article
- Development and validation of educational materials for food allergy.The Journal of pediatrics · 2012Article
- Managing anxiety related to anaphylaxis in childhood: a systematic review.Journal of allergy · 2012Article
- Pediatric Food Allergies and Psychosocial Functioning: Examining the Potential Moderating Roles of Maternal Distress and Overprotection.Journal of pediatric psychologyArticle
Corrections and comments
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Authors and funding
8 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundFood allergy (FA) is potentially severe and requires intensive education to master allergen avoidance and emergency care. There is evidence suggesting the need for a comprehensive curriculum for food allergic families.
methodsThis paper describes the results of focus groups conducted to guide the development of a curriculum for parents of food allergic children. The focus groups were conducted using standard methodology with experienced parents of food allergic children.
resultsParticipants were parents (n = 36) with experience managing FA recruited from allergy clinics at two academic centers. Topics identified by parents as key for successful management included as expected: (i) early signs/symptoms, (ii) 'cross-contamination', (iii) label-reading, (iv) self-injectable epinephrine; and (v) becoming a teacher and advocate. Participants also recommended developing a 'one page-road map' to the information, and to provide the information early and be timed according to developmental stages/needs. Suggested first points for curriculum dissemination were emergency rooms, obstetrician and pediatrician offices. Participants also recommended targeting pediatricians, emergency physicians, school personnel, and the community-at-large in educational efforts. Parents often sought FA information from non-medical sources such as the Internet and support groups. These resources were also accessed to find ways to cope with stress. Paradoxically, difficulties gaining access to resources and uncertainty regarding reliability of the information added to the stress experience. DISCUSSION: Based on reports from experienced parents of food allergic children, newly diagnosed parents could benefit from a comprehensive FA management curriculum. Improving access to clear and concise educational materials would likely reduce stress/anxiety and improve quality of life.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.