ArticleEuropean journal of oncology nursing : the official journal of European Oncology Nursing Society2011
Informal caregiving in Hematopoietic Blood and Marrow Transplant patients.
Article in European journal of oncology nursing : the official journal of European Oncology Nursing Society, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 54 citations in OpenAlex.
- Impact of informal cancer caregiving across the cancer experience: A systematic literature review of quality of life.Palliative & supportive care · 2020Pooled it
- Adaptation of Coping Together - a self-directed coping skills intervention for patients and caregivers in an outpatient hematopoietic stem cell transplantation setting: a study protocol.BMC health services research · 2018Trial
- Trimodal prehabilitation for hematopoietic stem cell transplantation: A best evidence summary.Asia-Pacific journal of oncology nursing · 2026Review
- Nurses' perspectives on caregiver engagement in hematopoietic stem cell transplantation: A qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- The Caregiver Paradigm in Hematopoietic Cell Transplant: Current and Future Directions.Transplantation and cellular therapy · 2025Review
- A Mobile Health Intervention in Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: A Randomized Controlled Trial to Examine Health-Related Quality of Life.BMC digital health · 2025Article
- Can you spare 100 days? The allogeneic hematopoietic cell transplant caregiver requirement from the perspective of social workers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Prevalence of and Factors Associated with Marital Distress among Hematopoietic Cell Transplantation Survivors: Results from a Large Cross-Sectional Study.Transplantation and cellular therapy · 2022Article
- Quality of life and informational needs for allogeneic hematopoietic stem cell transplant among patients and their caregivers visiting long-term follow-up clinic.Blood cell therapy · 2022Article
- Sociodemographic and health factors associated with the risk of financial catastrophe when informal care for patients with haematological neoplasms is replaced by formal care.Health economics review · 2022Article
- Biobehavioral Implications of Covid-19 for Transplantation and Cellular Therapy Recipients.Frontiers in immunology · 2022Review
- Health-Related and Economic Burden Among Family Caregivers of Patients with Acute Myeloid Leukemia or Hematological Malignancies.Advances in therapy · 2021Review
- Family caregivers' support needs during allo-HSCT-a longitudinal study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Electronic Health Record Portal Use by Family Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: United States National Survey Study.JMIR cancer · 2021Article
- Caregiver availability and patient access to hematopoietic cell transplantation: social worker perspectives inform practice.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Catastrophic financial effect of replacing informal care with formal care: a study based on haematological neoplasms.The European journal of health economics : HEPAC : health economics in prevention and care · 2019Article
- The Effect of Psychosocial Interventions on Outcomes for Caregivers of Hematopoietic Cell Transplant Patients.Current hematologic malignancy reports · 2018Review
- Coming of Age With Cancer: Physical, Social, and Financial Barriers to Independence Among Emerging Adult SurvivorsOncology nursing forum · 2018Article
- A scoping review of caregiver burden during allogeneic HSCT: lessons learned and future directions.Bone marrow transplantation · 2016Article
- Designing and operationalizing a customized internal evaluation model for cancer treatment support programs.Journal of cancer education : the official journal of the American Association for Cancer Education · 2014Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
purposeHematopoietic cell transplant patients are among the most vulnerable and acutely ill cancer populations (Bevans et al., 2008). The responsibility of caring for the daily physical and psychosocial needs of these patients after transplant is placed mostly on family caregivers (Williams, 2007). The purpose of this descriptive correlational research study was to describe caregiving experiences of 56 caregivers of HCT patients 3-12 months following transplant. METHODS & SAMPLE: Patients and caregivers were recruited from two west coast regional transplant programs in the United States. Variables studied were: relationship quality, rewards of caregiving, predictability, role strain, patient function, caregiving activities, and caregiver quality of life (QOL). KEY
resultsResults indicated that all areas of role strain are significantly negatively correlated with caregiver's QOL. Predictability was negatively associated with problem solving and emotional strain indicating that as the level of predictability of the situation decreases, caregiver strain and problem solving increase. Predictability was positively correlated to caregiver QOL indicating that as the situation is more predictable caregiver QOL increases. Emotional strain, problem-solving strain, and usual care strain were significantly positively related, indicating that emotional strain and problem-solving strain increased together. As usual care strain increased, so did problem-solving strain and emotional strain.
conclusionsSuggestions for interventions include assessing and responding to caregiver issues such as emotional strain, problem-solving strain, usual care strain, unpredictability, and QOL. Examples of caregiver-focused interventions include providing timely appropriate information about these caregiver concerns including elements that make the caregiving situation predictable, and incorporating best practices for preventing and minimizing caregiver emotional strain.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.