ReviewQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2011
Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions.
Review in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 19 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 4 syntheses or guidelines pooled it, 59 citations in OpenAlex.
- Children's and adolescents' perspectives on living with advanced cancer: A meta-synthesis of qualitative research.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Pooled it
- Updating our understanding of health-related quality of life issues in children with cancer: a systematic review of patient-reported outcome measures and qualitative studies.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Pooled it
- Functioning in patients with schizophrenia: a systematic review of the literature using the International Classification of Functioning, Disability and Health (ICF) as a reference.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Pooled it
- Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2014Pooled it
- The PompeQoL questionnaire: Development and validation of a new measure for children and adolescents with Pompe disease.Journal of inherited metabolic disease · 2024Article
- Content analysis of health-related quality-of-life patient-reported outcome measures used in patients with atopic dermatitis.Journal of the American Academy of Dermatology · 2023Article
- Systematic review of content and phrasing of patient-reported outcome measures used in patients with psoriasis.JAAD international · 2023Article
- A comparative performance analysis of the International Classification of Functioning, Disability and Health and the Item-Perspective Classification framework for classifying the content of patient reported outcome measures.Health and quality of life outcomes · 2021Article
- Measuring Health-Related Quality of Life in Pediatric Neurology.Journal of child neurology · 2020Review
- Randomized comparative study of child and caregiver responses to three software functions added to the Japanese version of the electronic Pediatric Quality of Life Inventory (ePedsQL) questionnaire.Journal of patient-reported outcomes · 2020Article
- The Burn Model Systems outcome measures: a content analysis using the International Classification of Functioning, Disability, and Health.Disability and rehabilitation · 2017Article
- Quality of life of pediatric oncology patients: Do patient-reported outcome instruments measure what matters to patients?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Article
- A review of patient-reported outcomes for children and adolescents with obesity.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2014Review
- Patient-important activity and participation outcomes in clinical trials involving children with chronic conditions.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2014Review
- Article
- ICF, quality of life, and depression in breast cancer: perceived disability in disease-free women 6 months after mastectomy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2013Observational
- Psychometric evaluation of a Swedish version of Minneapolis-Manchester quality of life-youth form and adolescent form.Health and quality of life outcomes · 2013Article
- Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY).Health and quality of life outcomes · 2013Article
- A critical exploration of the International Classification of Functioning, Disability, and Health (ICF) framework from the perspective of oncology: recommendations for revision.Journal of multidisciplinary healthcare · 2013Article
Corrections and comments
- Erratum issued
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe impact of cancer on children can be assessed through various concepts including mental and physical health status and most significantly quality of life (QOL). It has been difficult to compare data collected through these instruments due to a lack of continuity or understanding of overlaps and gaps between them. To delineate the content of the most commonly used instruments in childhood cancer on an item-by-item basis, this study used standardized methods to link health information to the International Classification of Functioning, Disability, and Health (ICF) as well as World Health Organization (WHO) standard definitions of health and quality of life.
methodMEDLINE, CINAHL, EMBASE, PsycINFO, Cancerlit, and Sociological Abstracts were searched from the inception of each database to June 15th, 2009 for health status and quality of life instruments. The six most common cancer-specific and generic instruments employed in primary research in childhood cancer were analyzed on an item-by-item basis by two content assessors specializing in ICF linking and WHO definitions of health and QOL, using a standardized iterative technique developed at the ICF Research Branch.
resultsWe report the extent to which health status and QOL are represented in each instrument. Most measures emphasize a majority health status perspective according to WHO definitions of health. The generic instruments stress activities and participation domains over body functions or environment factors according to the ICF while cancer-specific instruments vary in their emphasis. Initial phase of coding agreement between assessors was in the substantial range (0.6-0.8 using Cohen's kappa).
conclusionA comprehensive and systematic content analysis of the most commonly employed health status and QOL instruments was conducted for this review. Two criteria were described as follows: the perspectives of the instruments (i.e., health vs. QOL) and the health content (according to ICF components). No single instrument demonstrated an ideal balance of content characteristics according to these criteria, and thus, each must be considered carefully relative to one's particular research or clinical evaluative purpose.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.