ArticleCongenital heart disease
Clinical profile of the adolescent/adult Fontan survivor.
Article in Congenital heart disease. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 3 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 3 syntheses or guidelines pooled it, 53 citations in OpenAlex.
- Fontan Circulation Associated Organ Abnormalities Beyond the Heart, Lungs, Liver, and Gut: A Systematic Review.Frontiers in cardiovascular medicine · 2022Pooled it
- Effects of Exercise Training in Postoperative Patients With Congenital Heart Disease: A Systematic Review and Meta-Analysis of Randomized Controlled Trials.Journal of the American Heart Association · 2020Pooled it
- Durable mechanical circulatory support in teenagers and adults with congenital heart disease: A systematic review.International journal of cardiology · 2017Pooled it
- The single ventricle presenting late: surgical options.Indian journal of thoracic and cardiovascular surgery · 2025Review
- Article
- Study on the optimal elastic modulus of flexible blades for right heart assist device supporting patients with single-ventricle physiologies.Frontiers in cardiovascular medicine · 2024Article
- Thyroid dysfunction in pediatric Fontan patients is associated with unfavorable hemodynamic status and severity of protein-losing enteropathy: A report from the Fontan care network.International journal of cardiology. Congenital heart disease · 2023Article
- Body Mass Index Trajectory and Outcome Post Fontan Procedure.Journal of the American Heart Association · 2022Article
- Neurodevelopmental and Mental Health Outcomes in Patients With Fontan Circulation: A State-of-the-Art Review.Frontiers in pediatrics · 2022Review
- Hepatic Steatosis in Patients With Single Ventricle and a Fontan Circulation.Journal of the American Heart Association · 2021Article
- Cardiovascular and Stroke Nursing Council Science in Review.Journal of the American Heart Association · 2019Article
- Longitudinal Assessment of Outcome From Prenatal Diagnosis Through Fontan Operation for Over 500 Fetuses With Single Ventricle-Type Congenital Heart Disease: The Philadelphia Fetus-to-Fontan Cohort Study.Journal of the American Heart Association · 2018Article
- Regional brain gray matter changes in adolescents with single ventricle heart disease.Neuroscience letters · 2018Article
- State of the art of the Fontan strategy for treatment of univentricular heart disease.F1000Research · 2018Review
- Esophageal Varix in an Adult Fontan Survivor.Internal medicine (Tokyo, Japan) · 2017Article
- Hepatocellular carcinoma after the Fontan procedure in a 16-year-old girl: A case report.Medicine · 2016Article
- Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation.The Journal of pediatrics · 2016Observational
- Critical care management of the adult patient with congenital heart disease: focus on postoperative management and outcomes.Current treatment options in cardiovascular medicine · 2015Article
- The relationship of patient medical and laboratory characteristics to changes in functional health status in children and adolescents after the Fontan procedure.Pediatric cardiology · 2014Article
- Chronic health problems and health-related quality of life in Chinese children and adolescents: a population-based study in Hong Kong.BMJ open · 2013Article
Corrections and comments
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Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
objectivesThe study aims to describe the clinical profile of the adult Fontan survivor and identify the worries, symptoms, and the impact of cardiac surveillance most commonly experienced.
designA descriptive, cross-sectional design was used.
settingThe study was performed in outpatient adult and pediatric cardiology clinics in university-affiliated and private practice offices. PATIENTS: Fifty-four adolescent and adult patients with single ventricle congenital heart disease who have undergone the Fontan procedure participated in the study. The mean age was 26 ± 9 years with 52% female and 63% Caucasian. OUTCOME MEASURES: Demographic and clinical data were obtained by a standard intake form and retrospective chart reviews. The Congenital Heart Disease TNO/AZL Adult Quality Of Life questionnaire was completed to assess worries, symptoms, and the impact of cardiac surveillance.
resultsThe majority were single (73%), employed or full-time students (93%), with health insurance (94%), had a single left ventricle (78%), the diagnosis of tricuspid atresia or double inlet left ventricle (59%), lateral tunnel Fontan type (44%), history of arrhythmias (76%), left ventricle ejection fraction percentage >50 (66%), oxygen saturations >90% (70%), frequent headaches (50%), scoliosis (22%), varicose veins, ascites, and liver cirrhosis (46%), normal body mass index (59%), and New York Heart Association class I (48%) and II-III (52%). Primary worries related to current health (83%), job/employment (69%), ability to work, (61%) and living independently (54%). The most bothersome symptoms were shortness of breath with ambulation (69%), dizziness (61%), and palpitations (61%).
conclusionsFontan survivors experience residua and sequelae from multiple surgical procedures and the natural disease course. Our results support the need for ongoing assessment of both physical symptoms and psychosocial concerns, and suggest the need for multiple risk factor intervention strategies that improve physical and emotional health in Fontan survivors.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.