ArticleJournal of the American Medical Informatics Association : JAMIA2011
Social but safe? Quality and safety of diabetes-related online social networks.
Article in Journal of the American Medical Informatics Association : JAMIA, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
30 citing papers in PubMed, 95 citations in OpenAlex.
- An Evaluation of Digital Health Tools to Support Multidisciplinary Teams in Managing Patients with Type 2 Diabetes.Journal of multidisciplinary healthcare · 2026Review
- Determinants of the adoption of an online community for people with diabetes: a qualitative study.Scientific reports · 2025Article
- Social Media and the Adolescent Transplant Recipient.Pediatric transplantation · 2025Review
- Oral Diabetes Medication Videos on Douyin: Analysis of Information Quality and User Comment Attitudes.JMIR formative research · 2024Article
- Associations Between Patient-Reported Outcome Measures of Physical and Psychological Functioning and Willingness to Share Social Media Data for Research Among Adolescents With a Chronic Rheumatic Disease: Cross-Sectional Survey.JMIR pediatrics and parenting · 2023Article
- People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design.PLOS digital health · 2023Article
- Quality of complementary and alternative medicine information for type 2 diabetes: a cross-sectional survey and quality assessment of websites.BMC complementary medicine and therapies · 2021Article
- Participation of Patients With Type 2 Diabetes in Online Support Groups is Correlated to Lower Levels of Diabetes Self-Management.Journal of diabetes science and technology · 2021Article
- Digital Health Technology to Enhance Adolescent and Young Adult Clinical Preventive Services: Affordances and Challenges.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2020Review
- Article
- Technological Health Intervention in Population Aging to Assist People to Work Smarter not Harder: Qualitative Study.Journal of medical Internet research · 2018Article
- Research on Clinical Preventive Services for Adolescents and Young Adults: Where Are We and Where Do We Need to Go?The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2017Review
- Recent Themes in Social Networking Service Research.PloS one · 2017Article
- Evolving Research Data Sharing Networks to Clinical App Sharing Networks.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2017Article
- Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers.Journal of medical Internet research · 2016Review
- Patient Use of Email, Facebook, and Physician Websites to Communicate with Physicians: A National Online Survey of Retail Pharmacy Users.Journal of general internal medicine · 2016Article
- Telehealth interventions to reduce management complications in type 1 diabetes: A review.World journal of diabetes · 2015Review
- Expectations in the field of the internet and health: an analysis of claims about social networking sites in clinical literature.Sociology of health & illness · 2015Article
- High-tech tools for exercise motivation: use and role of technologies such as the internet, mobile applications, social media, and video games.Diabetes spectrum : a publication of the American Diabetes Association · 2015Article
- Features of online health communities for adolescents with type 1 diabetes.Western journal of nursing research · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveTo foster informed decision-making about health social networking (SN) by patients and clinicians, the authors evaluated the quality/safety of SN sites' policies and practices.
designMultisite structured observation of diabetes-focused SN sites. Measurements 28 indicators of quality and safety covering: (1) alignment of content with diabetes science and clinical practice recommendations; (2) safety practices for auditing content, supporting transparency and moderation; (3) accessibility of privacy policies and the communication and control of privacy risks; and (4) centralized sharing of member data and member control over sharing.
resultsQuality was variable across n=10 sites: 50% were aligned with diabetes science/clinical practice recommendations with gaps in medical disclaimer use (30% have) and specification of relevant glycosylated hemoglobin levels (0% have). Safety was mixed with gaps in external review approaches (20% used audits and association links) and internal review approaches (70% use moderation). Internal safety review offers limited protection: misinformation about a diabetes 'cure' was found on four moderated sites. Of nine sites with advertising, transparency was missing on five; ads for unfounded 'cures' were present on three. Technological safety was poor with almost no use of procedures for secure data storage and transmission; only three sites support member controls over personal information. Privacy policies' poor readability impedes risk communication. Only three sites (30%) demonstrated better practice. Limitations English-language diabetes sites only.
conclusionThe quality/safety of diabetes SN is variable. Observed better practice suggests improvement is feasible. Mechanisms for improvement are recommended that engage key stakeholders to balance autonomy, community ownership, conditions for innovation, and consumer protection.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.