ArticleScience (New York, N.Y.)2011
Research ethics. Research practice and participant preferences: the growing gulf.
Article in Science (New York, N.Y.), 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 56 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
56 citing papers in PubMed.
- The survey of public perception and general knowledge of genomic research and medicine in Japan conducted by the Japan Agency for Medical Research and Development.Journal of human genetics · 2019Trial
- Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.American journal of human genetics · 2017Trial
- "A Double-Edged Sword": A Brief History of Genomic Data Governance and Genetic Researcher Perspectives on Data Sharing.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2024Article
- Social and scientific motivations to move beyond groups in allele frequencies: The TOPMed experience.American journal of human genetics · 2022Review
- What do participants think of our research practices? An examination of behavioural psychology participants' preferences.Royal Society open science · 2022Article
- Attitudes of Dilated Cardiomyopathy Patients and Investigators Toward Genomic Study Enrollment, Consent Process, and Return of Genetic Results.Clinical and translational science · 2021Observational
- Data linkages between patient-powered research networks and health plans: a foundation for collaborative research.Journal of the American Medical Informatics Association : JAMIA · 2019Article
- Motivations for data sharing-views of research participants from four European countries: A DIRECT study.European journal of human genetics : EJHG · 2019Article
- Paying Tribute to Henrietta Lacks at Tuskegee University and at The Virginia Henrietta Lacks Commission, Richmond, Virginia.Journal of health care for the poor and underserved · 2019Article
- Are all "research fields" equal? Rethinking practice for the use of data from crowdsourcing market places.Behavior research methods · 2017Article
- Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.BMC medical research methodology · 2016Article
- Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.Annual review of genomics and human genetics · 2016Review
- A survey of patient perspectives on the research use of health information and biospecimens.BMC medical ethics · 2016Article
- Precision medicine informatics.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- Participant views on consent in cancer genetics research: preparing for the precision medicine era.Journal of community genetics · 2016Article
- Respecting Autonomy Over Time: Policy and Empirical Evidence on Re-Consent in Longitudinal Biomedical Research.Bioethics · 2016Article
- Consent Issues in Genetic Research: Views of Research Participants.Public health genomics · 2016Article
- Article
- Perspectives of Decisional Surrogates and Patients Regarding Critical Illness Genetic Research.AJOB empirical bioethics · 2016Article
- Differences in preferences for models of consent for biobanks between Black and White women.Journal of community genetics · 2016Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
PubMed holds no abstract for this paper.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.