ArticleJournal of the Medical Library Association : JMLA2011
Using information prescriptions to refer patients with metabolic conditions to the Genetics Home Reference website.
Article in Journal of the Medical Library Association : JMLA, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed.
- Evaluating information prescriptions in two clinical environments.Journal of the Medical Library Association : JMLA · 2011Trial
- Developing critical thinking and decision-making skills for cancer information: the Informed Health Choice-Cancer online learning resource.Journal of cancer survivorship : research and practice · 2026Article
- Impact of health information prescription in thyroid cancer.Journal of the Medical Library Association : JMLA · 2026Article
- Evaluating the feasibility and acceptability of the Informed Health Choices-Cancer programme: A pilot randomised trial protocol.PloS one · 2025Article
- Digital interventions for genomics and genetics education, empowerment, and service engagement: A systematic review.Journal of community genetics · 2023Review
- Assessing the e-health literacy level and its predictors in heart patients: A Case Study in a Heart Hospital Center in Iran.Journal of education and health promotion · 2023Article
- Impact of Health Information Prescription on Self-care of Women with Breast Cancer.Advanced biomedical research · 2018Article
- Libraries and Librarians: Key Partners for Progress in Health Literacy Research and Practice.Studies in health technology and informatics · 2017Article
- Information prescriptions, 1930-2013: an international history and comprehensive review.Journal of the Medical Library Association : JMLA · 2014Review
- Describing the use of the internet for health, physical activity, and nutrition information in pregnant women.Maternal and child health journal · 2013Article
- Internet use by parents of infants with positive newborn screens.Journal of inherited metabolic disease · 2012Article
- Article
- Cancer misinformation on social media.CA: a cancer journal for cliniciansReview
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectivesThe objectives of this study were to assess the reactions of adult patients and parents of children with metabolic conditions to receipt of an "information prescription" (IP) to visit Genetics Home Reference (GHR), a National Institutes of Health/National Library of Medicine online resource, and evaluate the perceived utility of information found on the site.
methodsPatients seen at the University of Utah Metabolic Service Clinic were invited to participate in the study and asked to complete an initial survey to gather demographic data and an online survey six weeks later to obtain information about user experience.
resultsFifty-three of 82 individuals completed both surveys, for an overall response rate of 64.6%. Most respondents (88.7%) agreed that receiving the IP was a "good idea," and nearly all used the IP to visit GHR. More than three-quarters (79.6%) agreed that information on GHR supplemented a physician's advice; 60.4% reported an improved understanding of a health condition; and 41.5% either looked for or would consider looking for additional information. Eighty-six percent of respondents were satisfied with the information found on GHR, and 80% would recommend the site.
conclusionsUse of an IP to direct patients to GHR was well received, and retrieved information was perceived as useful in key areas. The high level of satisfaction with GHR argues for expanded use of the IP approach in this patient population.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.