ArticlePloS one2010
Factors associated with self and informant ratings of the quality of life of people with dementia living in care facilities: a cross sectional study.
Article in PloS one, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 51 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
51 citing papers in PubMed, 1 synthesis or guideline pooled it, 128 citations in OpenAlex.
- Proxy rated quality of life of care home residents with dementia: a systematic review.International psychogeriatrics · 2017Pooled it
- Trial
- Unravelling the Self-Report Versus Proxy-Report Conundrum for Older Aged Care Residents: Findings from a Mixed-Methods Study.The patient · 2024Trial
- Exploring self-report and proxy-report quality-of-life measures for people living with dementia in care homes.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Trial
- Trial
- Trial
- Informant Perspectives on the Quality of Life of Healthy Older People, and People With Dementia Living in the Community and Care Facilities.Australasian journal on ageing · 2026Observational
- Quality of life and associated characteristics in long-term care residents with advanced dementia in Macao: a cross-sectional study.BMC geriatrics · 2024Article
- Determinants of quality of life in French nursing home residents across cognitive levels: a comparative study using convergent mixed-methods.BMC geriatrics · 2024Article
- Examining interrater agreement between self-report and proxy-report responses for the quality of life-aged care consumers (QOL-ACC) instrument.Journal of patient-reported outcomes · 2024Article
- Exploring older people's understanding of the QOL-ACC, a new preference-based quality-of-life measure, for quality assessment and economic evaluation in aged care: the impact of cognitive impairment and dementia.Health and quality of life outcomes · 2024Article
- Article
- Pain and quality of life in nursing home residents with dementia after admission - a longitudinal study.BMC health services research · 2023Article
- Care provider interaction and psychological well-being of persons living with dementia in long-term care: a longitudinal observational study.BMC nursing · 2023Article
- Loneliness among very old people with and without dementia: prevalence and associated factors in a representative sample.European journal of ageing · 2022Article
- Determinants of quality of life among people with dementia: evidence from a South Asian population.BMC geriatrics · 2022Article
- Concordance of self- and informant-rated depressive symptoms in nursing home residents with Dementia: cross-sectional findings.BMC psychiatry · 2022Article
- Everyday wishes of older people living with dementia in care planning: a qualitative study.BMC health services research · 2022Article
- French cross-cultural adaptation and validation of the Quality of Life-Alzheimer's Disease scale in Nursing Homes (QOL-AD NH).Health and quality of life outcomes · 2021Article
- Article
Corrections and comments
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Authors and funding
8 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundThere is no consensus regarding the optimal approach to assessment of the quality of life of people with dementia. We undertook the present study to describe and determine the factors associated with ratings of the quality of life of a cohort of people with dementia living in a residential care facility. METHODOLOGY/PRINCIPAL
findings351 people with dementia living in residential care facilities, and their staff and family informants participated in this cross sectional observational study. Quality of life was measured using self (Quality of Life in Alzheimer's Disease [QoL-AD] scale), and informant (QoL-AD and Alzheimer's Disease Related QoL Scale) reports. 226 people (64%) with dementia (median MMSE 17; 12-21) were able to self rate the QoL-AD scale and these subjects' ratings were compared to ratings by staff and family. Both staff and family informant ratings of the QoL-AD underestimated self ratings (mean difference -7.8, 95% CI -8.8, -6.7 for staff rated QoL-AD; and mean difference -7.2, 95% CI -8.5, -6.0 for family rated QoL-AD). Self ratings of QoL were lower among people who were restrained, had fallen or had pain. Informant ratings of the QoL of the participants with dementia were consistently and significantly lower for people with severe cognitive impairment, who had fallen, had presence of neuropsychiatric symptoms, or where care giver distress was present. Documented restraint, reported pain and neuropsychiatric symptoms were independently associated with lower self rating of the QoL-AD in multivariate models. Cognitive impairment, case conferencing, hospitalizations and neuropsychiatric symptoms were found to be independently associated with staff rated ADRQL.
conclusionsThe majority of people with dementia living in residential care facilities can rate their own QoL. Informant ratings underestimate self ratings of QoL of people with dementia, and appear to be associated with factors which are not associated with self ratings.
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