ArticleEuropean journal of pediatrics2011
Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents.
Article in European journal of pediatrics, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
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Who cites it
26 citing papers in PubMed.
- Article
- Modelling the Transference of Paediatric Patients with Inborn Errors of Metabolism to Adult Hospitals: Clinical Experience.Journal of clinical medicine · 2025Article
- Sucessful Transition in Rare Endocrine Diseases: Patient Experiences in a French Reference Centre.Clinical endocrinology · 2025Article
- Anxiety and care experiences in adolescents with chronic health conditions: an international, longitudinal study across the transfer of care.BMJ paediatrics open · 2024Article
- Letting go/ moving on: A scoping review of relational effects on transition to adult care.Health care transitions · 2024Article
- Transition of patients with Gaucher disease type 1 from pediatric to adult care: results from two international surveys of patients and health care professionals.Frontiers in pediatrics · 2024Article
- Article
- Chronic Conditions and School Participation of First-Year University Students-HOUSE ULisbon Study.Children (Basel, Switzerland) · 2022Article
- Transition of Chronic Pediatric Nephrological Patients to Adult Care Excluding Patients on Renal Replacement Therapy with Literature Review.Children (Basel, Switzerland) · 2022Article
- We mind your step: understanding and preventing drop-out in the transfer from paediatric to adult tertiary endocrine healthcare.Endocrine connections · 2022Article
- Current challenges and opportunities in the care of patients with fibrodysplasia ossificans progressiva (FOP): an international, multi-stakeholder perspective.Orphanet journal of rare diseases · 2022Review
- Development of a complex intervention to support parents of adolescents with chronic illness transferring from pediatrics to adult care (ParTNerSTEPs).BMC health services research · 2022Article
- Implementing a Transition Program from Paediatric to Adult Services in Phenylketonuria: Results After Two Years of Follow-Up with an Adult Team.Nutrients · 2021Observational
- Challenges in Transition From Childhood to Adulthood Care in Rare Metabolic Diseases: Results From the First Multi-Center European Survey.Frontiers in medicine · 2021Article
- The need for specialized training for adults with congenital urologic conditions: differences in opinion among specialties.Central European journal of urology · 2020Article
- Nurses' perceived role in healthcare transition of adolescents with intellectual disabilities.African journal of disability · 2020Article
- Parental uncertainty about transferring their adolescent with congenital heart disease to adult care.Journal of advanced nursing · 2019Article
- Moving on: A survey of Canadian nurses' self-reported transition practices for young people with chronic pain.Canadian journal of pain = Revue canadienne de la douleur · 2018Article
- Mental health literacy among pediatric hospital staff in the United Arab Emirates.BMC psychiatry · 2017Article
- Pediatric to Adult Care Transition: Perspectives of Young Adults With Sickle Cell Disease.Journal of pediatric psychology · 2017Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The aim of this study was to assess the expectations of adolescents with chronic disorders with regard to transition from pediatric to adult health care and to compare them with the expectations of their parents. A cross-sectional study was carried out including 283 adolescents with chronic disorders, aged 14-25 years (median age, 16.0 years), and not yet transferred to adult health care, and their 318 parents from two university children's hospitals. The majority of adolescents and parents (64%/70%) perceived the ages of 18-19 years and older as the best time to transfer to adult health care. Chronological age and feeling too old to see a pediatrician were reported as the most important decision factors for the transfer while the severity of the disease was not considered important. The most relevant barriers were feeling at ease with the pediatrician (45%/38%), anxiety (20%/24%), and lack of information about the adult specialist and health care (18%/27%). Of the 51% of adolescents with whom the pediatric specialist had spoken about the transfer, 53% of adolescents and 69% of parents preferred a joint transfer meeting with the pediatric and adult specialist, and 24% of these adolescents declared that their health professional had offered this option. In summary, the age preference for adolescents with chronic disorders and their parents to transfer to adult health care was higher than the upper age limits for admission to pediatric health care in many European countries. Anxiety and a lack of information of both adolescents and their parents were among the most important barriers for a smooth and timely transfer according to adolescents and parents.
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