ArticleAmerican journal of public health2011
Understanding community-based processes for research ethics review: a national study.
Article in American journal of public health, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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The trial behind it
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Who cites it
20 citing papers in PubMed.
- When communities are really in control: ethical issues surrounding community mobilisation for dengue prevention in Mexico and Nicaragua.BMC public health · 2017Trial
- Conflicting perspectives on what constitutes fair compensation and benefits among research stakeholders in Malawi.BMC medical ethics · 2025Article
- Characteristics of research review boards in the context of community-academic settings: A scoping review.Journal of clinical and translational science · 2025Review
- A Roadmap for the Human Gut Cell Atlas.Nature reviews. Gastroenterology & hepatology · 2023Review
- Challenges and recommendations to improve institutional review boards' review of community-engaged research proposals: A scoping review.Journal of clinical and translational science · 2023Article
- "Community 101 for researchers": an online training program to build capacity for ethical community-engaged research with Native Hawaiians and Pacific Islanders.Frontiers in public health · 2023Article
- Does Resolution 8430 of 1993 respond to the current needs of ethics in health research with human beings in Colombia?Biomedica : revista del Instituto Nacional de Salud · 2019Article
- Beyond the Belmont Principles: A Community-Based Approach to Developing an Indigenous Ethics Model and Curriculum for Training Health Researchers Working with American Indian and Alaska Native Communities.American journal of community psychology · 2019Article
- Survey on Using Ethical Principles in Environmental Field Research with Place-Based Communities.Science and engineering ethics · 2019Article
- Advancing Community-Based Participatory Research to Address Health Disparities in Hawai'i: Perspectives from Academic Researchers.Hawai'i journal of medicine & public health : a journal of Asia Pacific Medicine & Public Health · 2019Article
- Within and beyond the communal turn to informed consent in industry-sponsored pharmacogenetics research: merits and challenges of community advisory boards.Journal of community genetics · 2016Review
- Community-Based Review of Research Across Diverse Community Contexts: Key Characteristics, Critical Issues, and Future Directions.American journal of public health · 2015Article
- Research Done in "A Good Way": The Importance of Indigenous Elder Involvement in HIV Community-Based Research.American journal of public health · 2015Article
- Enhancing stewardship of community-engaged research through governance.American journal of public health · 2015Article
- Translating evidence into population health improvement: strategies and barriers.Annual review of public health · 2015Review
- Community, context, and the contrasting roles of clinicians and researchers: challenges raised by statutory rape.The American journal of bioethics : AJOB · 2014Article
- Ethical community-engaged research: a literature review.American journal of public health · 2013Review
- Research ethics and indigenous communities.American journal of public health · 2013Article
- Rethinking Research Ethics for Latinos: The Policy Paradox of Health Reform and the Role of Social Justice.Ethics & behavior · 2012Article
- Toolkit for Community-engaged Wellness Mapping.CES4Health.infoArticle
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesInstitutional review boards (IRBs), designed to protect individual study participants, do not routinely assess community consent, risks, and benefits. Community groups are establishing ethics review processes to determine whether and how research is conducted in their communities. To strengthen the ethics review of community-engaged research, we sought to identify and describe these processes.
methodsIn 2008 we conducted an online survey of US-based community groups and community-institutional partnerships involved in human-participants research. We identified 109 respondents who met participation criteria and had ethics review processes in place.
resultsThe respondents' processes mainly functioned through community-institutional partnerships, community-based organizations, community health centers, and tribal organizations. These processes had been created primarily to ensure that the involved communities were engaged in and directly benefited from research and were protected from research harms. The primary process benefits included giving communities a voice in determining which studies were conducted and ensuring that studies were relevant and feasible, and that they built community capacity. The primary process challenges were the time and resources needed to support the process.
conclusionsCommunity-based processes for ethics review consider community-level ethical issues that institution-based IRBs often do not.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.