ArticleJournal of pain and symptom management2011
Reciprocal suffering: caregiver concerns during hospice care.
Article in Journal of pain and symptom management, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis.Palliative medicine · 2021Pooled it
- Informal caregiving of hospice patients.Journal of palliative medicine · 2014Pooled it
- Narrative identity at the end of life: a qualitative analysis of dignity therapy interviews from an existential perspective.BMC palliative care · 2025Trial
- Article
- "Less words, more pictures": creating and sharing data visualizations from a remote health monitoring system with clinicians to improve cancer pain management.Frontiers in digital health · 2025Article
- Navigating the emotional landscape: exploring caregivers' journey alongside breast cancer survivors with chronic pain.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Pain Management Education for Rural Hospice Family Caregivers: A Pilot Study With Embedded Implementation Evaluation.The American journal of hospice & palliative care · 2024Article
- Family caregiver emotional distress in advanced cancer: the DME-C scale psychometric properties.BMJ supportive & palliative care · 2023Article
- Unmet needs of patients with cancer in their last year of life as described by caregivers in a developing world setting: a qualitative study.BMC palliative care · 2020Article
- Article
- Informal Caregiver Characteristics Associated with Viral Load Suppression Among Current or Former Injection Drug Users Living with HIV/AIDS.AIDS and behavior · 2015Article
- Perceived mental health status of drug users with HIV: concordance between caregivers and care recipient reports and associations with caregiving burden and reciprocity.AIDS and behavior · 2014Article
- Hospice caregivers' experiences with pain management: "I'm not a doctor, and I don't know if I helped her go faster or slower".Journal of pain and symptom management · 2013Article
- Application of the VALUE communication principles in ACTIVE hospice team meetings.Journal of palliative medicine · 2013Article
- Conveying empathy to hospice family caregivers: team responses to caregiver empathic communication.Patient education and counseling · 2012Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
contextFor many hospice caregivers, the constancy and difficulty of caregiving impact their physical quality of life and cause depression, psychological distress, guilt, loneliness, and restrictions on social activities.
objectivesDeviating from traditional unidimensional research on hospice caregivers, this study explored the transactional nature of reciprocal suffering by examining caregiver concerns through four dimensions: physical, psychological, social, and spiritual.
methodsResearchers analyzed audiotapes of intervention discussions between hospice caregivers and research social workers.
resultsResults indicated that, of the 125 pain talk utterances, most referenced psychological concern (49%), followed by physical (28%), social (22%), and spiritual (2%) concerns. Reflections on concerns revealed a global perspective of caregiving, which highlighted the patient's needs juxtaposed to the caregiver's recognized limitations.
conclusionBy examining the reciprocal nature of suffering for caregivers, this study reinforced the need for assessing caregivers in hospice care, with specific emphasis on the importance of providing caregiver education on pain management.
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Registered trials
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