ArticleJournal of the National Medical Association2010
Health-related stigma in young adults with sickle cell disease.
Article in Journal of the National Medical Association, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 65 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
65 citing papers in PubMed, 1 synthesis or guideline pooled it, 145 citations in OpenAlex.
- Cortisol in sickle cell disease: a systematic review and meta-analysis.Blood advances · 2025Pooled it
- Bright IDEAS problem-solving skills training for caregivers of children with sickle cell disease: A two-site pilot feasibility trial.Pediatric blood & cancer · 2021Trial
- Implementation of a comprehensive sickle cell center leads to improved access to care and decreased acute care use.BMC health services research · 2026Article
- Sickle cell disease-related myths and misconceptions among tribal communities in India: a multi-state qualitative study.Journal of community genetics · 2026Article
- Indian Council of Medical Research (ICMR)-Sickle Cell Disease (SCD) Stigma Scale for India (ISSSI): A Protocol for Scale Development.Journal of racial and ethnic health disparities · 2026Article
- Article
- Criterion validity of the functional status and pain assessment scale versus pain and length of stay in hospitalized adults with SCD.Journal of sickle cell disease · 2026Article
- Health System-Led Multimodal and Multilevel Interventions to Reduce Sickle Cell Disease-Related Stigma Among Tribal Populations in India: An Implementation Research Protocol.Journal of racial and ethnic health disparities · 2025Article
- Indian Council of Medical Research (ICMR)-Sickle cell disease (SCD) Stigma Scale for India (ISSSI): development and psychometrics.The Lancet regional health. Southeast Asia · 2025Article
- Mapping the Gaps: A Scoping Review of Virtual Care Solutions for Caregivers of Children with Chronic Illnesses.Children (Basel, Switzerland) · 2025Review
- "I can't let it stop me": perspectives on aging from older adults with sickle cell disease.Journal of sickle cell disease · 2025Article
- Understanding stakeholders' experience with sickle cell disease by social media listening across Europe.Frontiers in genetics · 2025Article
- Experiences with healthcare navigation and bias among adult women with sickle cell disease: a qualitative study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Beliefs negatively mediate adolescents' and adults' knowledge about sickle cell disease prevention and relationship choices; a one-center exploratory study in Central Region, Ghana.Archives of public health = Archives belges de sante publique · 2024Article
- Factitious disorder presenting as sickle cell disease: a case report.Lancet regional health. Americas · 2024Article
- Mental health, pain and likelihood of opioid misuse among adults with sickle cell disease.British journal of haematology · 2024Article
- Evaluating self- vs interviewer-administered screening for depression in sickle cell disease.Blood advances · 2024Article
- A health equity ECHO for clinicians of individuals with SCD.Journal of sickle cell disease · 2024Article
- Creating demand for unmet needs: Agile Storytelling.Frontiers in health services · 2024Article
- A qualitative study on stigma experienced by young adults living with sickle cell disease in Accra, Ghana.International health · 2023Article
5 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
Abstract
Health-related stigma is increasingly becoming a major public health issue that is receiving more attention. Young adults with sickle cell disease (SCD) are at risk for health-related stigmatization due to the many challenges of the disease. SCD includes the lifelong challenges of managing the chronic illness while accessing and navigating the health care system. The burdens of the disease can affect all aspects of the lives of individuals with SCD to include physiological, psychological, and social well-being. Although others may be involved in the process of stigmatization, the purpose of this paper was to support the need to develop patient-oriented interventions to prevent and treat health-related stigma in young adults with SCD, as these individuals may face health-related stigma throughout their lives, but especially immediately after transitioning from pediatric to adult care. Additionally, the Revised Theory of Self-Care Management for Sickle Cell Disease is offered as a framework from which theory-based interventions can be derived.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.