ArticleQuality & safety in health care2010
The quality of cancer patient experience: perspectives of patients, family members, providers and experts.
Article in Quality & safety in health care, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
50 citing papers in PubMed, 4 syntheses or guidelines pooled it, 98 citations in OpenAlex.
- The role of digital health technology in rural cancer care delivery: A systematic review.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2022Pooled it
- Adult oncology patients' experiences of living with a central venous catheter: a systematic review and meta-synthesis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- How technology impacts communication between cancer patients and their health care providers: A systematic literature review.International journal of medical informatics · 2021Pooled it
- The experience of patients with cancer on narrative practice: A systematic review and meta-synthesis.Health expectations : an international journal of public participation in health care and health policy · 2020Pooled it
- Evaluation of a specialized oncology nursing supportive care intervention in newly diagnosed breast and colorectal cancer patients following surgery: a cluster randomized trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Trial
- Nurse navigators in early cancer care: a randomized, controlled trial.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2014Trial
- Consultations of patients with cancer to enhance shared decision-making in Japan: A retrospective observational study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Observational
- Electronic Patient-Reported Outcome-Driven Symptom Management by Oncology Pharmacists in a Majority-Minority Population: An Implementation Study.JCO oncology practice · 2024Article
- Identification of interventions to improve patient experienced quality of care in transitions between healthcare settings: a scoping review.BMC health services research · 2024Article
- Transitioning from the Emergency Department to a General Internist Outpatient Clinic for Paracentesis: A Qualitative Inquiry.Digestive diseases and sciences · 2024Article
- Validating the Effectiveness of the Patient-Centered Cancer Care Framework by Assessing the Impact of Work System Factors on Patient-Centered Care and Quality of Care: Interview Study With Newly Diagnosed Cancer Patients.JMIR human factors · 2024Article
- Experiences of treatment decision-making among older newly diagnosed adults with acute myeloid leukemia: a qualitative descriptive study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Transitioning from the Emergency Department to a General Internist Outpatient Clinic for Paracentesis: A Qualitative.Research square · 2023Article
- The Hospitalist-Oncologist co-ManagemEnt (HOME) system improves hospitalization outcomes of patients with cancer.BMC health services research · 2023Article
- Associations between healthcare costs and care experiences among older adults with and without cancer.Journal of geriatric oncology · 2023Article
- Women's experience of the health information process involving a digital information tool before commencing radiation therapy for breast cancer: a deductive interview study.BMC health services research · 2023Article
- Improving personalized treatment decision-making for older adults with cancer: The necessity of eliciting patient preferences.Journal of geriatric oncology · 2022Article
- Review
- Understanding quality and equity: patient experiences with care in older adults diagnosed with hematologic malignancies.Cancer causes & control : CCC · 2021Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundAnecdotes and limited evidence suggest that a significant percentage of cancer patients encounter troublesome problems in the course of their care.
methodsThe authors collected data about barriers to and facilitators of high-quality cancer care and innovative solutions to improve quality from three sources: focus groups with patients, family members of cancer patients and providers; site visits to cancer care providers and organisations in three American communities; and expert interviews.
resultsThe authors' respondents consistently described a similar list of problems facing the individual with a suspicion or diagnosis of cancer and his/her family: delays in and lack of coordination of care, patient information gaps and passivity, inadequate attention to emotional and social problems, and difficulty accessing services because of inadequate insurance, limited financial resources or rural residence. The fragmentation and uncertain accountability of cancer care contribute to these issues. Respondents recommended linking patients with a care navigator or manager, using computer technology to better inform and support patients and connect providers, and reforming provider reimbursement to encourage more patient-centred care.
conclusionsCancer patients and their families have urgent needs for information and support especially early in their course. To meet these needs, early cancer care must be better organised, integrated, and patient centred. The Institute of Medicine's Model for the Delivery of Psychosocial Services appears to provide a relevant guide to delivering cancer care that better meets patient and family needs.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.