ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2011
The extent to which common health-related quality of life indices capture constructs beyond symptoms and function.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Health-related quality of life measures provide information on the contributors, components, and consequences of frailty in HIV: a systematic mapping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Pooled it
- Personality traits and income inequalities in self-rated oral and general health.European journal of oral sciences · 2022Article
- A comparative performance analysis of the International Classification of Functioning, Disability and Health and the Item-Perspective Classification framework for classifying the content of patient reported outcome measures.Health and quality of life outcomes · 2021Article
- Do Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation Study.Patient related outcome measures · 2021Article
- The WHOQOL-BREF: a modern psychometric evaluation of its internal construct validity in people with multiple sclerosis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- A review of the application, feasibility, and the psychometric properties of the individualized measures in cancer.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Review
- In support of an individualized approach to assessing quality of life: comparison between Patient Generated Index and standardized measures across four health conditions.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Article
- How well are we measuring postoperative "recovery" after abdominal surgery?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2015Article
- Content verification of the EORTC QLQ-C30/EORTC QLQ-BR23 with the International Classification of Functioning, Disability and Health.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2015Article
- Do generic utility measures capture what is important to the quality of life of people with multiple sclerosis?Health and quality of life outcomes · 2013Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThis study proposes to identify for 5 widely used generic HRQL and QOL measures the extent to which function and global feelings of well-being are represented in their content.
methodsThe 5 indices were the EQ-5D, the HUI, the SF-36, SF-12, and the WHOQOL-Bref. A total of 15 raters with a variety of health and research backgrounds mapped the items. Raters independently identified all codes that could possibly map to the item and indicated the code that best reflected the underlying intent of the item, using the standardized mapping rules and methodology. A Delphi process aided consensus for each of the items. The consensus rounds involved reconsideration of item codes for which 70% of raters did not agree on the "best" code. These consensus rounds were terminated when item codes reached the threshold of 70% agreement or when it became evident from that consensus would not be reached.
resultsFunction was a predominant construct for the 5 indices, with the proportion of items capturing function ranging from a low of 27% for the WHOQOL-Bref to a high of 92% for the SF-12. Less than 50% of items within the indices mapped to the granularity of function as described by the ICF.
conclusionsThis paper demonstrates an additional method to validate the content of health-related indices to supplement the qualitative methods of consulting with experts and patients.
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