Evidence map›Paper›PMID 21088131›Full record

ArticleMedical decision making : an international journal of the Society for Medical Decision Making

Investing in deliberation: a definition and classification of decision support interventions for people facing difficult health decisions.

Glyn Elwyn, Dominick Frosch, Angelo E Volandes, Adrian Edwards, Victor M Montori

Registry-linked trialAbstract read
PubMed Publisher
In one paragraph

Article in Medical decision making : an international journal of the Society for Medical Decision Making. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06638632 (Helping Patients, Families, and Clinicians Make Shared Decisions About Therapies for Dementia), which is not on this map. Cited by 117 papers, 8 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
117citing papers in PubMed, 8 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06638632 nanot yet recruitingnot on this map

Helping Patients, Families, and Clinicians Make Shared Decisions About Therapies for Dementia

TypeinterventionalSponsorUniversity of Colorado, DenverRan2025 to 2026Enrolled100ConditionsDementia, Decision AidsArmsDecision aid
3 · Its place in the literature

Who cites it

117 citing papers in PubMed, 8 syntheses or guidelines pooled it.

  1. Quality and effectiveness of osteoporosis treatment decision aids: a systematic review and environmental scan.Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA · 2020
    Pooled it
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  6. Decision aids for people considering taking part in clinical trials.The Cochrane database of systematic reviews · 2015
    Pooled it
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  9. Improving cancer clinical trial enrollment and patient understanding using TrialTalk, a structured communication method: a pilot randomized controlled trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Trial
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  12. Evaluation of a Novel Hospice-Specific Patient Decision Aid.The American journal of hospice & palliative care · 2024
    Trial
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  14. Improving Breast Cancer Surgical Treatment Decision Making: The iCanDecide Randomized Clinical Trial.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2018
    Trial
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  19. An exploratory mixed-methods crossover study comparing DVD- vs. Web-based patient decision support in three conditions: The importance of patient perspectives.Health expectations : an international journal of public participation in health care and health policy · 2015
    Trial
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57 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

5 authors.

Glyn ElwynClinical Epidemiology Interdisciplinary Research Group, Department of Primary Care and Public Health, Cardiff University, Heath Park, UK. elwyng@cardiff.ac.uk
Dominick Frosch
Angelo E Volandes
Adrian Edwards
Victor M Montori

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This article provides an analysis of 'decision aids', interventions to support patients facing tough decisions. Interest has increased since the concept of shared decision making has become widely considered to be a means of achieving desirable clinical outcomes. We consider the aims of these interventions and examine assumptions about their use. We propose three categories, interventions that are used in face-to-face encounters, those designed for use outside clinical encounters and those which are mediated, using telephone or other communication media. We propose the following definition: decision support interventions help people think about choices they face; they describe where and why choice exists; they provide information about options, including, where reasonable, the option of taking no action. These interventions help people to deliberate, independently or in collaboration with others, about options, by considering relevantattributes; they support people to forecast how they might feel about short, intermediate and long-term outcomes which have relevant consequences, in ways which help the process of constructing preferences and eventual decision making, appropriate to their individual situation. Although quality standards have been published for these interventions, we are also cautious about premature closure and consider that the need for short versions for use inside clinical encounters and long versions for external use requires further research. More work is also needed on the use of narrative formats and the translation of theory into practical designs. The interest in decision support interventions for patients heralds a transformation in clinical practice although many important areas remain unresolved.

Indexed as

Decision MakingDecision Support TechniquesPhysician-Patient RelationsChoice BehaviorHumansPatient Education as TopicPatient SatisfactionRisk Assessment

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.