ArticleHealth research policy and systems2010
Status, challenges and facilitators of consumer involvement in Australian health and medical research.
Article in Health research policy and systems, 2010. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 41 citations in OpenAlex.
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- Opportunities to enhance consumer and community engagement training for researchers and healthcare providers: a qualitative study.BMJ open · 2023Article
- Indigenous Peoples' Experience and Understanding of Menstrual and Gynecological Health in Australia, Canada and New Zealand: A Scoping Review.International journal of environmental research and public health · 2023Article
- Perinatal Women's Views of Pharmacist-Delivered Perinatal Depression Screening: A Qualitative Study.International journal of environmental research and public health · 2022Article
- 'Share your views'-international consultation informs a patient engagement strategy for the Multinational Association of Supportive Care in Cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- A snapshot of consumer engagement in clinical trials in Australia: results of a national survey of clinical trial networks and research organisations.Research involvement and engagement · 2022Article
- Long-term consumer involvement in cancer research: Working towards partnership.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Developing population health research priorities in Asian city state: Results from a multi-step participatory community engagement.PloS one · 2019Article
- Agents of change: establishing quality improvement collaboratives to improve adherence to Australian clinical guidelines for dementia care.Implementation science : IS · 2018Article
- Public involvement and health research system governance: a qualitative study.Health research policy and systems · 2018Article
- Public involvement in health research systems: a governance framework.Health research policy and systems · 2018Article
- Prioritizing research topics: a comparison of crowdsourcing and patient registry.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2018Article
- 'Knowledge for better health' revisited - the increasing significance of health research systems: a review by departing Editors-in-Chief.Health research policy and systems · 2017Article
- Integrating consumer engagement in health and medical research - an Australian framework.Health research policy and systems · 2017Review
- Consumer and community involvement in health and medical research: evaluation by online survey of Australian training workshops for researchers.Research involvement and engagement · 2016Article
- Two methods for engaging with the community in setting priorities for child health research: who engages?PloS one · 2015Article
- Article
- Involving consumers and the community in the development of a diagnostic instrument for fetal alcohol spectrum disorders in Australia.Health research policy and systems · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe emergent international practice of involving consumers in health research is driven, in part, by the growing share of health research that can only be applied in and emerge from knowledge that is shaped by human values and societal contexts. This is the first investigation of its kind to identify the current prevalence, challenges, enabling factors and range of approaches to consumer involvement in health and medical research in Australia.
methodsA nation-wide survey of research funding organisations and organisations that conduct research was performed during 2008-2009.
resultsMarked variation in consumer involvement experience and perceptions exists between research funders and researchers. Research funders were over eight times more likely than organisations conducting research to involve consumers in identifying research needs and prioritising research topics. Across both groups, practical and time constraints were reported as key challenges to involving consumers, while guidelines on consumer involvement and evidence of effect were the most important potential enablers. More than a third of research organisations indicated that when consumer involvement was a condition of research funding, it was an important facilitator of involvement.
conclusionIt is no longer simply enough to keep society informed of important scientific breakthroughs. If Australian health research is to take into account important social contexts and consequences, it must involve consumers. A set of minimum consumer involvement standards and associated guidelines, that are agreed and routinely adopted, could ensure that consumers and the Australian community they represent, are given an opportunity to shed light on experiences and local circumstance, and express views and concerns relevant to health research.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.